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adventuresfromtheheart | The Stangroom family's HLHS journey

The Stangroom family's HLHS journey

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adventuresfromtheheart | The Stangroom family's HLHS journey | adventuresfromtheheart.wordpress.com Reviews

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The Stangroom family's HLHS journey

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CHD Awareness Week 2014 | adventuresfromtheheart

https://adventuresfromtheheart.wordpress.com/2014/02/07/chd-awareness-week-2014

The Stangroom family's HLHS journey. Appearances can be deceptive…. CHD Awareness Week 2014 – Day 2 →. CHD Awareness Week 2014. February 7, 2014. During the week of the 7 – 14 February, heart families love to get talking about and sharing photos of their heart warriors in an effort to raise awareness of heart defects. This year is no exception – and we’ll be blogging each day to help do our bit. Why do CHDs occur? I guess this is the ‘million dollar question’! Sent from my iPhone. Thank you – yes I...

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Happy 2nd Birthday Erin! | adventuresfromtheheart

https://adventuresfromtheheart.wordpress.com/2015/04/04/happy-2nd-birthday-erin

The Stangroom family's HLHS journey. Happy 2nd Birthday Erin! April 4, 2015. Today, Erin became 2 years old. It’s hard to believe we’ve got to this moment – as when she was born we just couldn’t anticipate what lay ahead for our heart hero. For a toddler with half a working heart she is doing incredibly well at the moment. We continue to be thankful for her determination and the talents at Southampton General Hospital. 4 thoughts on “ Happy 2nd Birthday Erin! April 4, 2015 at 8:52 pm. Sent from my iPad.

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freyastangroom | adventuresfromtheheart

https://adventuresfromtheheart.wordpress.com/author/freyastangroom

The Stangroom family's HLHS journey. April 3, 2016. Today Erin celebrates her 3rd birthday. Yes, you’ve read that correctly. Her 3rd birthday. A momentous occasion that was summed up last night when I suddenly realised I was telling her, “You’ve made it darling, another birthday.”. Please keep Erin in your thoughts and say a little prayer today for all of those half-a-heart angels who didn’t get to celebrate their 3rd birthday on Earth, and their families who miss them dearly. To the one that beats in you.

4

Two years on | adventuresfromtheheart

https://adventuresfromtheheart.wordpress.com/2014/11/20/two-years-on

The Stangroom family's HLHS journey. Happy 2nd Birthday Erin! November 20, 2014. Two years ago tomorrow the lives of our whole family changed forever, in an unexpected and upsetting way. Both Lee and I were utterly shocked to hear during a 20 week scan that our unborn baby had a serious cardiac defect, and we had very tough decisions to make. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Happy 2nd Birthday Erin!

5

April | 2015 | adventuresfromtheheart

https://adventuresfromtheheart.wordpress.com/2015/04

The Stangroom family's HLHS journey. Monthly Archives: April 2015. April 16, 2015. Erin’s Health Visitor came this week to weigh her at home. This is because clinic, which is often busy with lots of babies can be a cause for germs being caught. We also have a Community Nurse that visits us at home for SATS checks. The poor HV didn’t have anything of the sort. After a fairly smooth process of stripping down for the scales and redressing (read: toddler torture! 8217;, ‘Sticker please! April 4, 2015. For a ...

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The important bit…. – Heart And A Half

https://heartandahalf.wordpress.com/2015/07/27/the-important-bit

Heart And A Half. Learning that we don't have to be perfect to be happy. The important bit…. July 27, 2015. At the Jam’s first post-op check. Showing off his work. 1 The Jam started (Nursery) school. Okay, we did expect him to go to school, but we did without a complicated care plan and with him doing the same hours and activities as everyone else. We were very lucky as there is another boy at the school with CHD who is also under the care of the Evelina. 4 I have a proper job again. 5 We flew long-haul!

heartandahalf.wordpress.com heartandahalf.wordpress.com

Normal Life – Heart And A Half

https://heartandahalf.wordpress.com/2014/03/09/normal-life

Heart And A Half. Learning that we don't have to be perfect to be happy. March 9, 2014. March 9, 2014. Last week we nervously headed back to the Evelina Children’s Hospital. For the Jam’s first post- Fontan. Cardiac check-up. Although he seems well to us – more energy, better colour – it’s still frightening to contemplate what they might find under the surface (literally). As it turns out, he’s doing better than we ever dared hope. His oxygen saturations. 7 thoughts on “ Normal Life. March 9, 2014. I wil...

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adventuresfromtheheart | The Stangroom family's HLHS journey

The Stangroom family's HLHS journey. April 16, 2015. Erin’s Health Visitor came this week to weigh her at home. This is because clinic, which is often busy with lots of babies can be a cause for germs being caught. We also have a Community Nurse that visits us at home for SATS checks. The poor HV didn’t have anything of the sort. After a fairly smooth process of stripping down for the scales and redressing (read: toddler torture! Erin was naturally asking for her prize: ‘Sticker time! April 4, 2015.

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