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Alpha-1 New Zealand - Home

Aplha 1 association new zealand

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Alpha-1 New Zealand - Home | alpha1.org.nz Reviews

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Aplha 1 association new zealand

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1

Alpha-1 New Zealand - Key points about Alpha-1

http://www.alpha1.org.nz/key_points

Key Points About Alpha-1. Newborn care: neonates with jaundice lasting greater than two weeks need to be screened for alpha-1 deficiency. Alpha-1 should be included on the newborn screening list. Alpha-1 takes time to develop to the disease state. If a diagnosis is made while young, an affected person might make different lifestyle choices, e.g., not smoking or drinking. What is alpha-1 antitrypsin deficiency? Whos is affected by A1AD. What are the symptoms. Key points about Alpha-1.

2

Alpha-1 New Zealand - Whos is affected by A1AD

http://www.alpha1.org.nz/whos_is_affected_by_a1ad

Who is affected by A1AD? A1AD genes are passed from parents to children. Everyone has two copies of the AAT gene. Most people have two normal copies. If you have a normal gene and one abnormal gene, there may be some deficiency, but A1AD sufferers usually have two disease-associated copies of that gene. Remember, though, that not everyone even with low levels of AAT will get emphysema, as the additional factor of airway inflammation (from smoke or dust or other conditions) is needed to cause damage.

3

Alpha-1 New Zealand - Links to other support

http://www.alpha1.org.nz/other_support

The Asthma Foundation (NZ) â. A non-profit organisation that aims to raise awareness of respiratory illnesses. They have sections on COPD (Chronic Obstructive Pulmonary Disease) that describe Alpha-1 antitrypsin deficiency. Http:/ asthmafoundation.org.nz. Alpha-1 Foundation (USA) â. Alpha-1 Association of Australia (aaa). An organisation dedicated to the help and support of Australians who are affected by and interested in Alpha-1 Antitrypsin Deficiency (A1AD). Http:/ www.alpha1.org.au.

4

Alpha-1 New Zealand - Tests and diagnosis

http://www.alpha1.org.nz/test_and_diagnosis

Medical tests and diagnosis of A1AD. AAT Genetic testing is also recommended if you have a relative who has been diagnosed with A1AD or a family history of early emphysema or liver disease. Early warning for a young person can guide them to avoid smoking and to choose the right sort of work. What is alpha-1 antitrypsin deficiency? Whos is affected by A1AD. What are the symptoms. Key points about Alpha-1. Links to other support.

5

Alpha-1 New Zealand - Bios

http://www.alpha1.org.nz/bios

Val and Marilyn at the 4th International Alpha-1 Patient Congress. My three sons were all tested so that they could make informed lifestyle choices, they are all carriers (MZ) of the defective gene. I want to encourage and support those with Alpha-1 and their families through networking. What is alpha-1 antitrypsin deficiency? Whos is affected by A1AD. What are the symptoms. Key points about Alpha-1. Links to other support.

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nzord.org.nz nzord.org.nz

NZORD - Rare disease support group directory

http://www.nzord.org.nz/support-groups

Skip to Primary Navigation. Skip to Secondary Navigation. Skip to Main Content. Skip to Utility Menu. Find a support group. Explore the NZORD site. How we can help. Living with a rare disease. What is a rare disease? Other New Zealanders’ stories. Stories from around the world. Press releases and submissions. Send us your story. Rare disease support group directory. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.

nzordgroups.org.nz nzordgroups.org.nz

NZORD (old) - Rare disease support group directory

http://www.nzordgroups.org.nz/support-groups

Skip to Primary Navigation. Skip to Main Content. Skip to Utility Menu. Explore the NZORD Site. Health Care and Support. Find us on Facebook. Subscribe to press releases and newsletters. Follow us on YouTube. NZORD accepts donations through Givealittle. New Zealand Organisation for Rare Disorders. PO Box 38-538,. 64 4 471 2226. Charities Commission Registration CC22512. Rare disease support group directory. NZORD has compiled a list of rare disease support groups. Can’t find your group? Phone: 07 896 7452.

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Welcome to the home page of Alpha-1 Association New Zealand. Alpha-1 Association New Zealand is a support group for individuals and their families affected by alpha-1 antitrypsin (AAT) deficiency. The group began in 1994 led by Pat Caughley who was the 20th person in NZ to receive a lung transplant In two years there were more than 50 members. The organisation lost momentum when Pat became ill and passed away in 2008. What is alpha-1 antitrypsin deficiency? Whos is affected by A1AD. What are the symptoms.

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