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A (not so) simple weekend away | Jimney, D and Me
https://jimneydandme.wordpress.com/2008/06/10/a-not-so-simple-weekend
Jimney, D and Me. Jimney’s APECED Story. A (not so) simple weekend away. List of items in this photo:. 3 x glucometers – so we are covered if one runs out of batteries, and we loose one (I heard a story from a friend with type 1 who always had three glucometers, and in the space of two days she lost two and one broke). Predsol eye drops – these have to be keep refridgerated. Powerade – one glass = 15g of carb – so this is a perfect hypo fixer. 3 x regular soft drink cans – another hypo fixer. 2 x insulin...
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Jimney’s APECED Story | Jimney, D and Me
https://jimneydandme.wordpress.com/james-story
Jimney, D and Me. Jimney’s APECED Story. Jimney’s APECED Story. For the next eleven years James had no new symptoms although he seemed to pick up every bug that was going around. 2 Addison’s Disease. 3 Insulin Dependent Diabetes. 8 Parietal cell dystrophy. Jimney’s APECED Story. January 19, 2008 at 9:38 pm. June 30, 2014 at 7:21 am. Thank you for your story. I am a dermatologist learning about APECED and I learn so much more from people’s stories rather than text books alone and I can put faces...I found...
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New site for Carers | Jimney, D and Me
https://jimneydandme.wordpress.com/2008/10/23/new-site-for-carers
Jimney, D and Me. Jimney’s APECED Story. New site for Carers. I know I haven’t posted for ages and I am planing to rectify that very soon – it’s been a hectic and stressful few months. This is just a quick post to let people know that there is a new site where Carers can meet, chat, join groups, write blog entries and more. If you are a carer (or have been one) head on over to Carers. If you aren’t a carer, but know someone who is please tell them about the site. Hope to see you there! From your own site.
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APECED links | Jimney, D and Me
https://jimneydandme.wordpress.com/apeced-links-2
Jimney, D and Me. Jimney’s APECED Story. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out. Notify me of new comments via email. Why Jimney, D. and me? Me = me, Liz. View my page on.
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APECED? | Jimney, D and Me
https://jimneydandme.wordpress.com/apeced
Jimney, D and Me. Jimney’s APECED Story. APECED stands for Autoimmune Polyendocrinopathy-Candidiasis-Ectodermic dystrophy. There are many other names for this syndrome including:. Autoimmune Polyendocrinopathy or Autoimmune Polyendocrine syndrome (APS1). Autoimmune Polyglandular Disease Type I. Polyglandular Autoimmune Syndrome (Type 1, 2 and 3). APECED syndrome is classified as a very rare genetic syndrome by the National Organisation for Rare Disorders ( www.rarediseases.org. Depigmentation of the skin).
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Jimney and me | Jimney, D and Me
https://jimneydandme.wordpress.com/jimney-and-me
Jimney, D and Me. Jimney’s APECED Story. I was born in Penrith NSW, in December 1981. Two years and two months later, James was born in the same hospital. I am the youngest in my family which consists of my Mum and Dad, my two older brothers Jack and Richard, and my older sister Louise. James has one younger brother, Andrew. James and I grew up in neighbouring towns, but we didn’t meet until 2004. James went to public school while I attended the Catholic school. In early 2008, James and I both had to sto...
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APECED links | Jimney, D and Me
https://jimneydandme.wordpress.com/apeced-links
Jimney, D and Me. Jimney’s APECED Story. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out. Notify me of new comments via email. Why Jimney, D. and me? Me = me, Liz. View my page on.
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Behind Every Man Is A Good Woman-An Expose Into The Lives Of Two Women Fighting For Their Loved One’s Survival | Jimney, D and Me
https://jimneydandme.wordpress.com/2008/04/27/behind-every-man-is-a-good-woman
Jimney, D and Me. Jimney’s APECED Story. Behind Every Man Is A Good Woman-An Expose Into The Lives Of Two Women Fighting For Their Loved One’s Survival. I have mentioned my friend Kate a few times on here and today you are going to learn a lot more about this wonderful woman! The other day, Kate and I were talking about the stress, fears and discrimination we face simply by being carers of loved ones with diabetes. Kate often interviews people over on her blog ‘Why did the insulin die in my pancreas?
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Rest In Peace | Jimney, D and Me
https://jimneydandme.wordpress.com/2008/05/12/rest-in-peace
Jimney, D and Me. Jimney’s APECED Story. This morning at 10am, Carbi went to heaven. After a long pain filled battle he is finally resting and pain free. We love you Carbi and we miss you already. This entry was posted on Monday, May 12th, 2008 at 11:13 am and is filed under dogs. You can follow any responses to this entry through the RSS 2.0. Feed You can leave a response. From your own site. Laquo; Previous Post. Next Post ». May 12, 2008 at 3:27 pm. OH MY GOD liz and James…. I am just so shocked.