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Meeting Mikayla: December 2011

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My day to day account with baby Mikayla. Trisomy 18 baby, and love of my life. Thursday, December 29, 2011. Post my first Christmas without you. Chiristmas, I've always loved Christmas. It's such a happy time. A time of family, of celebration. We were at home this Christmas and my folks were with us. And. Well. It was good to be with family, and we had fun. But boy, I felt your absence. And sometimes I just want somebody to see that, but no one ever does. The curse of being strong? Post my first Christma...

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Meeting Mikayla: July 2011

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My day to day account with baby Mikayla. Trisomy 18 baby, and love of my life. Saturday, July 16, 2011. Days 412 - 435. You're such a little delight, Mikayla. You're big blue eyes light up a room in an instant, and your smile is so catchy, and so inviting, you simply charm everyone you meet. You're just so special to us. Oh if only I reached out to my Father you way you reach to yours. Your smile makes everyday worthwhile. Thank you for your smile. Posted by Taryn van Rensburg. Subscribe to: Posts (Atom).

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Meeting Mikayla: The who, not the you.

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My day to day account with baby Mikayla. Trisomy 18 baby, and love of my life. Sunday, February 19, 2012. The who, not the you. I read this great article. And it got me thinking. I loved my daughter ferociously. More than others love their children? Perhaps not. But I loved her with a defiance against what was the norm. I loved her despite discrimination. I loved her despite a reality beyond most parents comprehension. Perhaps that does make me a dragon mother too. Does that make me particularly special?

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Meeting Mikayla: April 2012

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My day to day account with baby Mikayla. Trisomy 18 baby, and love of my life. Wednesday, April 18, 2012. I love this time of year. It's the smell in the air. It's not too hot, but not too cold. The grass is still green, and the air fresh. And it's my birthday month, which may have something to do with it. But it's also your birthday. To see you smile again! And your eyes. How I wish I could look into those big blue eyes of yours. As I posted nearly a year ago:. How Do I Love thee? Let me count the ways.

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Meeting Mikayla: August 2011

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My day to day account with baby Mikayla. Trisomy 18 baby, and love of my life. Thursday, August 18, 2011. Days 460 - 468 Here we go again. So, we thought we were keeping your sickness at bay. Well, actually Miks we did really well. We even managed to re-inflate that collapsed lobe. I found our that the last time you were really sick you actually had LOBAL pneumonia. Apparently worse because it is concentrated in one area. Hence the collapsed lobe. By Tuesday morning your temp was around 40C! Finally got ...

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Meeting Mikayla: January 2012

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My day to day account with baby Mikayla. Trisomy 18 baby, and love of my life. Tuesday, January 31, 2012. This is a seriously overdue post. I'm not sure what the delay for it is, but I have finally decided to write it. We have been through a pretty tough season. We welcomed our much awaited daughter into the world with much excitement, only to have those dreams snubbed out in an instant. Instead our sweet angel daughter was sent home with us "to die". Why He hasn't healed me completely? And to all you wo...

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Meeting Mikayla: Thank you

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My day to day account with baby Mikayla. Trisomy 18 baby, and love of my life. Tuesday, January 31, 2012. This is a seriously overdue post. I'm not sure what the delay for it is, but I have finally decided to write it. We have been through a pretty tough season. We welcomed our much awaited daughter into the world with much excitement, only to have those dreams snubbed out in an instant. Instead our sweet angel daughter was sent home with us "to die". Why He hasn't healed me completely? And to all you wo...

meetingmikayla.blogspot.com

Meeting Mikayla: June 2011

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My day to day account with baby Mikayla. Trisomy 18 baby, and love of my life. Wednesday, June 22, 2011. Days 408 - 411 The Big Fright. By Sunday morning there was a marked improvement though, and everyone was really happy with her response to the treatment she was receiving. She was obviously still weak, and unhappy, and still very sick, but certainly looked to getting better. But then Monday arrived. It wasn't supposed to happen like this. I needed more time. I kept thinking: What if this is it? Grante...

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Meeting Mikayla: Trisomy Awareness Month

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My day to day account with baby Mikayla. Trisomy 18 baby, and love of my life. Thursday, March 1, 2012. The month of March is Trisomy Awareness month. A trisomy is the presence, within a persons cells of an extra chromosome instead of the standard two strands (hence the "tri" for three! The most common Trisomy is Trisomy 21 (Downs Syndrome), followed by Trisomy 18 (Edwards Syndrome), and then Trisomy 13 (Patau Syndrome). Posted by Taryn van Rensburg. March 2, 2012 at 9:31 AM. March 8, 2012 at 1:14 PM.