cdkl5amberandus.blogspot.com
CDKL5, Amber and UsThere is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5
http://cdkl5amberandus.blogspot.com/
There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5
http://cdkl5amberandus.blogspot.com/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Wednesday
LOAD TIME
0.7 seconds
PAGES IN
THIS WEBSITE
12
SSL
EXTERNAL LINKS
2
SITE IP
172.217.6.65
LOAD TIME
0.651 sec
SCORE
6.2
CDKL5, Amber and Us | cdkl5amberandus.blogspot.com Reviews
https://cdkl5amberandus.blogspot.com
There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5
cdkl5amberandus.blogspot.com
CDKL5, Amber and Us: Disney is key!
http://cdkl5amberandus.blogspot.com/2011/12/disney-is-key.html
CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Friday, 16 December 2011. I haven’t posted in a couple of weeks! Amber had her 7 day heart monitoring and we haven’t heard anything as yet, although we had the clinic letter which I would say has sent the shivers through me to say the least. She is up and down health wise, and it really is a mystery. I mean I blame Disney! Amber and I wil...
CDKL5, Amber and Us: November 2011
http://cdkl5amberandus.blogspot.com/2011_11_01_archive.html
CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Monday, 21 November 2011. I was out in my garden yesterday, in south west England, and I was surprised to see that my favourite tree that has moved house with us in the past, and had lost all its leaves in preparation for winter, has started to bud as it would do in Spring! Isn’t nature just odd! Currently she is experiencing constipation...
CDKL5, Amber and Us: My Precious Heart
http://cdkl5amberandus.blogspot.com/2011/12/my-precious-heart.html
CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Monday, 5 December 2011. I haven’t posted in a week or so! Because there was something that happened last week that had me stopped in my tracks. There was nothing that could have prepared me for what happened next! Except what I was told last week, is that in fact, she has a hole in her heart, and not what was originally thought. And at t...
CDKL5, Amber and Us: An Angel in Heaven and Angel on Earth
http://cdkl5amberandus.blogspot.com/2012/06/angel-in-heaven-and-angel-on-earth.html
CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Friday, 8 June 2012. An Angel in Heaven and Angel on Earth. I would like to dedicate this post to my girls, Angel on Earth, Amber and and Angel in Heaven Bethany. Two days before Bethany died she sat on Simon Cowells lap and sang twinkle twinkle little star, and it then seemed that in a twinkle, she was up there with the stars. Lo...Mum t...
CDKL5, Amber and Us: Sunshine and Warmth
http://cdkl5amberandus.blogspot.com/2011/11/sunshine-and-warmth.html
CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Monday, 21 November 2011. I was out in my garden yesterday, in south west England, and I was surprised to see that my favourite tree that has moved house with us in the past, and had lost all its leaves in preparation for winter, has started to bud as it would do in Spring! Isn’t nature just odd! Currently she is experiencing constipation...
TOTAL PAGES IN THIS WEBSITE
12
Untitled Document
CDKL5 Nederland, info over het CDKL5-syndroom | CDKL5 Nederland
CDKL5 Nederland is een ‘niet geregistreerde vereniging’ van Nederlandse gezinnen met kinderen met het CDKL5-syndroom. CDKL5 staat voor het Cyclin-Dependent Kinase-Like 5 gen. Een afwijking op dit gen is lastig te behandelen, vooral de bijbehorende epilepsie. Heb je een algemene vraag over de CDKL5 Nederland, een vraag over de jaarlijkse bijeenkomst in Zwolle, of wil je ons op de één of andere manier ondersteunen, neem dan contact op met Pam, pam@cdkl5.nl.
Benvenuti in cdkl5 - Cdkl5
Tel: 39 320 7272 003. Terapie riabilitative ed igiene. Storia dell’associazionismo CDKL5. Terapie riabilitative ed igiene. Storia dell’associazionismo CDKL5. ONLUS - info@cdkl5.org. Agevolazioni fiscali per le persone con disabilità. Speciale Telethon. Campagna raccolta fondi con donazioni al. Camminata solidale Fitwalking Calabria. CAMMINIAMO PER LE VIE DI GIOIOSA JONICA (RC) Presidente. Corri con noi – Marghera. Questa foto rappresenta tutto. Non. Video Convegno aprile 2014. E camminano.”.
CDKL5 Slovakia - občianske združenie
Čo je CDKL5 ochorenie. Časté otázky o CDKL5. Sociálne služby a kompenzácie. Charitatívne a benefičné akcie. Darujte 2% z dane. Čo je CDKL5 ochorenie. Časté otázky o CDKL5. Sociálne služby a kompenzácie. Charitatívne a benefičné akcie. Darujte 2% z dane. Najabsurdnejšie a najbláznivejšie nádeje a sny sa niekedy stávajú príčinou mimoriadneho úspechu. Robert Strauss. Pomoc rodinám zasiahnutých narodením dieťaťa s mutáciou CDKL5 génu a zvyšovanie povedomia a informovanosti o tomto ochorení.
CDKL5, Amber and Us
CDKL5, Amber and Us. There is nothing that can prepare you for having a child with a disability and there is nothing that can prepare you for having a child with CDKL5. Friday, 8 June 2012. An Angel in Heaven and Angel on Earth. I would like to dedicate this post to my girls, Angel on Earth, Amber and and Angel in Heaven Bethany. Two days before Bethany died she sat on Simon Cowells lap and sang twinkle twinkle little star, and it then seemed that in a twinkle, she was up there with the stars. Lo...Howev...
Home | CDKL5
Giving hope through research and support to those living with a CDKL5 Disorder. CDKL5 Canada is a registered charitable organization, dedicated to finding a cure for CDKL5 disorder. Registered Charity number: 821379930RR0001. Support CDKL5 Canada by shopping at our online store.
Welcome To CDKL5 Europe | CDKL5 Europe
2nd CDKL5 Associations Conference in Bologna April 2014. CDKL5 Associazione di Volontariato ONLUS. Rett Syndrome and CDKL5 Ireland. CDKL5 Europe is a group of patient organisations and family contacts, to support families and research for those living with CDKL5 in Europe. The aims of CDKL5 Europe are:. To make the CDKL5 Disorder better known to the public, professionals, carers, and those directly affected across Europe. To improve communication within the European CDKL5 Disorder community. This is a pa...
CDKL5 & Gracie
Tuesday, 6 September 2011. Summer is at an end. Bizarre and really reinforces the need to spread awareness, to fund vital research and especially in the UK get some kind of NHS proforma/policy going for it to help our little ones now and for those newly diagnosed in the future. (I am alittle weary of meeting blank expressions in our medical professionals on a regular basis :0 . Three seperate companies contacted and several hours later apparently Gracie was uninsurable! Once home back in the UK we had al...
