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Kiera's Road with CDKL-5Kiera's Road with CDKL-5 I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading!
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Kiera's Road with CDKL-5 I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading!
http://cdklklc5.blogspot.com/
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Kiera's Road with CDKL-5 | cdklklc5.blogspot.com Reviews
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Kiera's Road with CDKL-5 I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading!
cdklklc5.blogspot.com
Kiera's Road with CDKL-5: September 2010
http://cdklklc5.blogspot.com/2010_09_01_archive.html
Kiera's Road with CDKL-5 I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading! Tuesday, September 14, 2010. We were suposed to go on an appointment, this is one we have already canceled before, but yesterday Kiera was having an off day and then vomited. Ove the night hours, Kiera was very agitated, so agitated she wriggeled herself right out of her brief! Subscribe to: Posts (Atom). Welcome, and thank you for reading. Http:/ www.cdkl5.com.
Kiera's Road with CDKL-5: Now in the ER...
http://cdklklc5.blogspot.com/2012/02/now-in-er.html
Kiera's Road with CDKL-5 I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading! Monday, February 27, 2012. Now in the ER. Waiting to find out what is going on with Kiera, her stomach is distended and squishy by the J Mic-Key.I sure hope its nothing. Subscribe to: Post Comments (Atom). This is my story about a CDKL-5 deletion (Xp22.13) and how it affects my daughter. Welcome, and thank you for reading. Http:/ www.cdkl5.com. Now in the ER.
Kiera's Road with CDKL-5: February 2012
http://cdklklc5.blogspot.com/2012_02_01_archive.html
Kiera's Road with CDKL-5 I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading! Monday, February 27, 2012. Now in the ER. Waiting to find out what is going on with Kiera, her stomach is distended and squishy by the J Mic-Key.I sure hope its nothing. Well, it couldn't last forever. Ended up vomiting last Tues and aspirated. Her O2 dropped. But has not vomited again and now we are just watching for dehydration. Wednesday, February 15, 2012.
Kiera's Road with CDKL-5: June 2010
http://cdklklc5.blogspot.com/2010_06_01_archive.html
Kiera's Road with CDKL-5 I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading! Wednesday, June 16, 2010. Things are going okay right now, but Kiera's. Seizures are still up and we are choosing to ride them out.of course we have the rescue medication and all, but we have learned over the years to not jump every time she goes through these cycles. Last week but her 02 sats. I started to think about every time Kiera. Has had to have IV's. We are now li...
Kiera's Road with CDKL-5: November 2009
http://cdklklc5.blogspot.com/2009_11_01_archive.html
Kiera's Road with CDKL-5 I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading! Wednesday, November 11, 2009. Still in the PICU. Today there has been no change except the BI PAP has been off since 8:00pm last night with Kiera's Oxygen holding at 94% on room air but she is still in need of frequent deep suctioning. Kiera is starting to come out of the sedation a bit more today and she was very itchy because of the mask. Kiera's O2 was still up and dow...
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Life with the Yin Yang Girls: Memorial for Border Patrol Agent Brian Terry
http://yinyanggirls.blogspot.com/2011/01/memorial-for-border-patrol-agent-brian.html
Life with the Yin Yang Girls. Friday, January 21, 2011. Memorial for Border Patrol Agent Brian Terry. DHS Commissioner Alan Bersin (escorted by body guard, I noticed). Ron Barber (Senator Giffords representative). Former DHS commissioners Bonner and Ahern. Others had attended Terry's funeral held previously in Michigan. The service can be seen here:. Http:/ www.ustream.tv/. Riderless Horse while Echo Taps is played. Riderless Horse while Amazing Grace is played. Thank you for sharing! What's On My Mind.
Life with the Yin Yang Girls: October 2008
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Life with the Yin Yang Girls. Friday, October 31, 2008. Today was a very long day for Tessa, with requests to go trick or treating as soon as she woke up this morning. I think we will wait until Christmas Eve to explain the gift giving and Santa aspects of Christmas. But the night finally did arrive, Daddy was able to leave work on time (that part was Mommy's treat! Thursday, October 30, 2008. She then helped me decorate the porch with fake spiders and such and went to bed talking about trick or treating...
Life with the Yin Yang Girls: October 2009
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Life with the Yin Yang Girls. Saturday, October 31, 2009. Thursday, October 29, 2009. Gramma Pat and Papa Bob Visit. Saturday, October 24, 2009. Fall in Arizona is a funny thing. It can be scorching hot one day and freezing cold the next. Sometimes it is a gradual change, down one week, back up the next. Here are some various shots throughout the month; our small-town parade, a water fight on the trampoline, Dallas keeping our puppy-friend Cooper in line (at 13 she's really doing well! Tessa loved runnin...
Life with the Yin Yang Girls: November 2009
http://yinyanggirls.blogspot.com/2009_11_01_archive.html
Life with the Yin Yang Girls. Monday, November 30, 2009. Subscribe to: Posts (Atom). Mommy Musings: Notes from the Trenches. The Many Sides of My Life. The Art of Dave McClellan. Kiera's Road with CDKL-5. Jeremy and Britany's Family. What's On My Mind. Never Forget the Memories of Life. Steven and Heather }. Dave, Casi and Kids. Makin' a Home in Georgia. Bostwick Boys and Mom. Liechty and Arndt Family Blog. X - Amott fam. Thoughts From an Evergreen Heart. X - Debbie S. A day in the life.
Life with the Yin Yang Girls: May 2009
http://yinyanggirls.blogspot.com/2009_05_01_archive.html
Life with the Yin Yang Girls. Sunday, May 24, 2009. Hanging out with Heather. Part of the man made habitat included a tunnel you could navigate through. Tessa was very nervous the first time but after she braved it through once we had to force her to leave it. Finishing off with an ice cream cone. Perfect on a hot Arizona spring day. A plaque on an outside wall. Wednesday, May 20, 2009. We stopped to walk around Slide Rock State Park and checked out the old homestead, cabins and the apple packinghouse...
Life with the Yin Yang Girls: March 2009
http://yinyanggirls.blogspot.com/2009_03_01_archive.html
Life with the Yin Yang Girls. Monday, March 23, 2009. Day three of CA trip. The last day of our quick trip to CA was spent hanging out with my family at Balboa Island. Tessa enjoyed being buried, as all kids do! Phoebe loves Gramma. No doubt about it. I love MY grandma. An enjoyable lunch at Wilma's Patio with mom, dad, grandma, grandpa and Uncle Brent. Tessa thought this dog was hilarious because he jumped with excitement at the visitors on his beach. I think his name was Fred? Sunday, March 22, 2009.
Life with the Yin Yang Girls: January 2009
http://yinyanggirls.blogspot.com/2009_01_01_archive.html
Life with the Yin Yang Girls. Friday, January 2, 2009. Is it Over Yet? And a few presents I have yet to send (really sorry! But everyone is home and alive and getting well, which is the best present any of us could ask for. (Grandma is still in a rehab home but out of the ICU and the hospital). So here are a few pics from our crazy Cmas and now I'm off to shop for those last few gifts! Phoebe looks so tall standing next to Grandma Jo. She wanted to try out Tessa's scooter. It snowed the day after Christm...
Life with the Yin Yang Girls: November 2008
http://yinyanggirls.blogspot.com/2008_11_01_archive.html
Life with the Yin Yang Girls. Monday, November 24, 2008. Keeping in line with the random things post. I'm copying Kelly's copying of Aurora and highlighting. The things I've done on this list. 1 Started my own blog. 2 Slept under the stars. 3 Played in a band. 5 Watched a meteor shower. 6 Given more than I can afford to charity. 7 Been to Disneyland/world. 8 Climbed a mountain. 9 Held a praying mantis. 10 Sung a solo. 13 Watched a lightning storm at sea. 14 Taught myself an art from scratch. 47 Had my po...
Life with the Yin Yang Girls: February 2009
http://yinyanggirls.blogspot.com/2009_02_01_archive.html
Life with the Yin Yang Girls. Tuesday, February 17, 2009. All this Beauty and Brains too? What can I say? My girls are smart and talented. Despite lots of coughs and sniffles, both have thoroughly enjoyed being back at school after the holidays. Phoebe had her debut musical performance, playing the xylophone and tambourine in a school concert. Despite a mostly full auditorium, well-lit for some reason, she didn't have even a touch of stage fright. She was all smiles before, during and after. X - Amott fam.
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Kiera's Road with CDKL-5
Kiera's Road with CDKL-5 I am writing this blog as a journal, but also to bring awarness to this rare disorder. Thank you for reading! Tuesday, March 25, 2014. I haven't updated for a few years but I plan to do that very soon. We have had some life changing events with Kiera and her health over the past year and I want to get everything right when I post next. Monday, February 27, 2012. Now in the ER. Well, it couldn't last forever. Ended up vomiting last Tues and aspirated. Her O2 dropped. Had is also g...
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