cf-fadedgenes.blogspot.com

Faded Genes

Sunday, October 5, 2014. I apologize ahead of time for the subject matter I'm addressing here. I'll be writing about some tough stuff that we'd all prefer not to talk about, stuff we'd really rather not even think about. But, when it comes to CF, it's part of the package. So, here goes . . . Sometimes, I think it's worthwhile to take a moment to consider exactly what constitutes the "best life." Does it mean the longest life? Some combination of the two? During that marathon session, Dr. Prestidge sh...

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Faded Genes | cf-fadedgenes.blogspot.com Reviews

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Sunday, October 5, 2014. I apologize ahead of time for the subject matter I'm addressing here. I'll be writing about some tough stuff that we'd all prefer not to talk about, stuff we'd really rather not even think about. But, when it comes to CF, it's part of the package. So, here goes . . . Sometimes, I think it's worthwhile to take a moment to consider exactly what constitutes the best life. Does it mean the longest life? Some combination of the two? During that marathon session, Dr. Prestidge sh...

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1 faded genes

2 choose quality

3 the fullest life

4 and loving it

5 posted by

6 caren

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Faded Genes | cf-fadedgenes.blogspot.com Reviews

https://cf-fadedgenes.blogspot.com

Sunday, October 5, 2014. I apologize ahead of time for the subject matter I'm addressing here. I'll be writing about some tough stuff that we'd all prefer not to talk about, stuff we'd really rather not even think about. But, when it comes to CF, it's part of the package. So, here goes . . . Sometimes, I think it's worthwhile to take a moment to consider exactly what constitutes the "best life." Does it mean the longest life? Some combination of the two? During that marathon session, Dr. Prestidge sh...

INTERNAL PAGES

cf-fadedgenes.blogspot.com

1

Faded Genes: November 2010

http://cf-fadedgenes.blogspot.com/2010_11_01_archive.html

Tuesday, November 2, 2010. We were to go Thursday morning. However, I had no plans of going. I was resolute. I was not going with my beautiful seven-month-old daughter to a depressing place until I was forced. Might I someday smile again? It was still too early to tell. As I stared, I was introduced to Beth and little five-year-old John. I don't remember what we talked about, just that I was amazed and hopeful. Maybe, just maybe . . . Years later, I remember calling Beth's house to give them a personal i...

2

Faded Genes: July 2013

http://cf-fadedgenes.blogspot.com/2013_07_01_archive.html

Friday, July 26, 2013. 5 Ways to Maintain a Healthy Relationship With Your Adult Child. So how do we deal with this? I have been forced into a serious change of behavior by being told in no uncertain terms that I am not allowed to ask about Holly’s health. Ever. At all. That’s hard for any loving mother, but if I am to love her the way she needs to be loved, that’s what I do. Not easy, but worth it to maintain the relationship. When your child needs you, be there unconditionally. Don’t shotgun ...Let his...

3

Faded Genes: August 2013

http://cf-fadedgenes.blogspot.com/2013_08_01_archive.html

Sunday, August 25, 2013. The Event: CF Bathroom Observations. It reminded me of the issues that every CF family experiences. When Holly was diagnosed and in the hospital, even the nurses held their noses when they came in our room as they insisted on examining each diaper. I advocate hazardous duty pay for anyone who's assigned that job. Of course, rather than the usual toilet, this one would have a padded seat and back, complete with head and arm rests for the occupant's comfort. It would be fitted ...

4

Faded Genes: February 2014

http://cf-fadedgenes.blogspot.com/2014_02_01_archive.html

Thursday, February 27, 2014. Your Smile for the Day. So, the next time you think you've screwed something, anything, up. Just think of me with that syringe dangling from my thigh and reassure yourself that not much can be any dumber than that. Wednesday, February 19, 2014. Quality Versus Quantity: CFF's New Regs. As I said, everyone must make his or her own decision on the subject. And, as Holly would say, “Thus endeth the rant.”. Cystic Fibrosis, living with chronic illness adults with cystic fibrosis.

5

Faded Genes: September 2011

http://cf-fadedgenes.blogspot.com/2011_09_01_archive.html

Saturday, September 24, 2011. Today was the CF Climb for Life here in Dallas, in which we climbed the stairs of the Bank of America tower and raised donations to benefit CFF. There I met up with the leader of our team, Beth, whose son, John Goldberg, died one year ago today, she showed up along with her family to support her and our team, which was called, appropriately: For the Love of John. Cystic Fibrosis, living with chronic illness adults with cystic fibrosis. Subscribe to: Posts (Atom).

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cf-fadedgenes.blogspot.com

Faded Genes

Sunday, October 5, 2014. I apologize ahead of time for the subject matter I'm addressing here. I'll be writing about some tough stuff that we'd all prefer not to talk about, stuff we'd really rather not even think about. But, when it comes to CF, it's part of the package. So, here goes . . . Sometimes, I think it's worthwhile to take a moment to consider exactly what constitutes the "best life." Does it mean the longest life? Some combination of the two? During that marathon session, Dr. Prestidge sh...

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