jackryan4.blogspot.com
Life with Jack: September 2012
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Raising Mito Awareness all week long! Monday, September 24, 2012. Our trip to the Oregon Coast! Mito Awareness Week has officially ended. I know, I know, I never did get to a post here, I started on one many times. its shameful really, compared to last years several posts during this very important week. It seems I'm on Facebook more these days as its so much easier using my iPhone when life gets too busy for anything else. I did create many Awareness Photos, including info and sharing. I wish they did.
splendidmayhem.blogspot.com
Splendid Mayhem: June 2010
http://splendidmayhem.blogspot.com/2010_06_01_archive.html
A brief look into our lives. View my complete profile. Information About Mitochondrial Disease. I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this. You say. "What do you mean Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy.". It's just a different place. It's slower-paced than Italy, less...
splendidmayhem.blogspot.com
Splendid Mayhem: October 2009
http://splendidmayhem.blogspot.com/2009_10_01_archive.html
A brief look into our lives. View my complete profile. I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.". You say. "What do you mean Holland? It's just a dif...
splendidmayhem.blogspot.com
Splendid Mayhem: August 2009
http://splendidmayhem.blogspot.com/2009_08_01_archive.html
A brief look into our lives. View my complete profile. I honestly havent kept up here b/c I feel so much. Had a heart cath done yest and they put me in card. NEW doctor, NEW plan! So far today weve done the echo, lab work, and pu. I may b here few days. We r testing my cortisol le. Im in the hosp. Plz say prayers. Weve had not so. You say. "What do you mean Holland? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy.". So you must go out and buy new guide books...
splendidmayhem.blogspot.com
Splendid Mayhem: April 2009
http://splendidmayhem.blogspot.com/2009_04_01_archive.html
A brief look into our lives. View my complete profile. Log was averaging a seizure an hour earlier today. Its going to be one of those up all night cram . Why are medical insurance companies a PITA? I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this. You say. "What do you mean Holland? I signed up for Italy! It's just a different place. It's s...
splendidmayhem.blogspot.com
Splendid Mayhem: December 2009
http://splendidmayhem.blogspot.com/2009_12_01_archive.html
A brief look into our lives. View my complete profile. I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland.". You say. "What do you mean Holland? It's just a dif...
splendidmayhem.blogspot.com
Splendid Mayhem: October 2008
http://splendidmayhem.blogspot.com/2008_10_01_archive.html
A brief look into our lives. View my complete profile. U Know U R A Bit Obsessive Compulsive When. Parkers Going To College! Another Call From St Louis. In Need Of Your EMAIL. WHAT DO I DO? Yet Another Busy Week! My Phones Guna BLOW! I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this. You say. "What do you mean Holland? I signed up for Italy!
jackryan4.blogspot.com
Life with Jack: June 2012
http://jackryan4.blogspot.com/2012_06_01_archive.html
Heart . . . ache. Monday, June 25, 2012. This was just one of the several Dr. visits we've made in the pass 6 weeks, which included a Mito, Nutritionist, Pulmonologist, Ped, Cardiology and GI appt. Jack has been experiencing chest pain and rapid heart rate episodes. His O2 Sats also drop during these episodes. So far we have'nt been able to explain whats causing this. His Heart Rate is'nt terribly fast, I've only caught it as high as 150's. Mito Dr. 6 month Follow-Up. But basically really NOTHING NEW.
jackryan4.blogspot.com
Life with Jack: November 2013
http://jackryan4.blogspot.com/2013_11_01_archive.html
We are still here, so where do I start. . . Tuesday, November 19, 2013. So how do you sum up 9 months? First off, can I vent about BLOGGER here! I have had trouble for months, can't upload pics or won't even load my posts at all! I actually had a long post already written up in March because. OUR BEAUTIFUL BOY TURNED 10! The guilt of not posting it was too much. I never finished it due to all the Blogger issues, and in part because I wanted it to be perfect, after all, this is a HUGE Birthday! Mom still ...
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