cysticfibrosisinsideout.blogspot.com
Cystic Fibrosis: Education and Inspiration: Clinical Trials: A Vital Part of Cystic Fibrosis Treament Advancements
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Cystic Fibrosis: Education and Inspiration. Sunday, November 17, 2013. Clinical Trials: A Vital Part of Cystic Fibrosis Treament Advancements. Additionally, there are first-ever inhaled antibiotic therapies being studied in CF patients. For example, Savara Pharma’s (. Great sources for online searches of CF clinical trials are. Drug pipeline, and company websites. A great example of a patient-friendly company website with easy-to-navigate study site info is Savara Pharma’s. Welcome to my blog! CF Roundta...
cysticfibrosisinsideout.blogspot.com
Cystic Fibrosis: Education and Inspiration: Cayston (Aztreonan for inhalation): My Experience
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Cystic Fibrosis: Education and Inspiration. Monday, May 21, 2012. Cayston (Aztreonan for inhalation): My Experience. Was approved (Gilead News Release). In the United States for treatment of chronic Pseudomonas Areuginosa infections in patients with Cystic Fibrosis in February 2010. My first dose of Cayston was July 3, 2010. This is a short blog entry about my experience with Cayston. Personal Experience with Cayston. In mid-April of 2012 I was once again prescribed Cayston and instructed to cycle it eve...
cysticfibrosisinsideout.blogspot.com
Cystic Fibrosis: Education and Inspiration: Anemia, Hair Loss, and Iron Infusions
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Cystic Fibrosis: Education and Inspiration. Thursday, August 30, 2012. Anemia, Hair Loss, and Iron Infusions. Occurs when the body does not have enough healthy red blood cells, which is vital for carrying oxygen into body tissues. Anemia can be caused by several conditions. However, for the purpose of this blog I am going to share my experience with anemia which began after I experienced massive hemoptysis in February 2011. My Hair is Falling Out! One year following my experience with massive hemoptysis.
cysticfibrosisinsideout.blogspot.com
Cystic Fibrosis: Education and Inspiration: Support Systems, Asking for Help, & Cheerleaders!
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Cystic Fibrosis: Education and Inspiration. Thursday, August 23, 2012. Support Systems, Asking for Help, and Cheerleaders! While having CF is stressful and challenging, the support from our loved ones can make a significant impact on our quality of life. Those we surround ourself with can encourage or discourage us, and thus may play a pivotal role during our healing process. In addition to beautiful friendships blossoming, great recipes (maybe I shouldn't write this blog at dinner time, food is on my br...
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Resources & Links | Sharing D
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Tips and resources for healthy lifestyles with Vitamin D. Bariatric & Obesity. What is Vitamin D3? What can you do? Are you getting enough D? Get Vitamin D in a Patch. Get tips, health news and blog posts in your inbox. Resources & Links. Vitamin D Council ( www.vitamindcouncil.org. D3forMe ( www.D3ForMe.com. Livestrong (www.Livestrong.com. US Department of Health Dietary Guidelines ( www.health.gov). Cystic Fibrosis News Network ( www.cysticfibrosisnews.com. What Can You Do? Resources & Links.
cysticfibrosisinsideout.blogspot.com
Cystic Fibrosis: Education and Inspiration: Monitoring CF Symptoms and Symptoms of a CF Exacerbation
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Cystic Fibrosis: Education and Inspiration. Monday, January 2, 2012. Monitoring CF Symptoms and Symptoms of a CF Exacerbation. Symptoms of a CF exacerbation may vary from one person to the next; however, many of the symptoms are similar in pediatric and adult patients with CF. In this blog entry I am listing a few devices to help monitor symptoms at home as well as symptoms of an exacerbation. Remember, not all patients will experience all symptoms listed during an exacerbation. Is also a useful device t...
cysticfibrosisinsideout.blogspot.com
Cystic Fibrosis: Education and Inspiration: Hemoptysis Changed My Life
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Cystic Fibrosis: Education and Inspiration. Sunday, February 12, 2012. Hemoptysis Changed My Life. One year ago in February 2011 I had My First Experience with Massive Hemoptysis. They allow me to breathe better; my lungs love breathing treatments and thus I enjoy my breathing treatments. Nothing feels better than the ease of breathing immediately after Hypertonic Saline and Pulmozyme- nothing. Subscribe to: Post Comments (Atom). There was an error in this gadget. Welcome to my blog!
cysticfibrosisinsideout.blogspot.com
Cystic Fibrosis: Education and Inspiration: Attention CF Centers: Reputation Matters
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Cystic Fibrosis: Education and Inspiration. Thursday, February 23, 2012. Attention CF Centers: Reputation Matters. We, CF patients, all want to believe we receiving care from. Let's say a patient has a bad experience with a CF doctor, nurse, or team member. What are they likely to do? Subscribe to: Post Comments (Atom). There was an error in this gadget. Welcome to my blog! View my complete profile. My Favorite CF Websites. Aero Vanc Inhaled Dry Powder for MRSA in CF (Clinical Trial). The Power of Two Mo...
cysticfibrosisinsideout.blogspot.com
Cystic Fibrosis: Education and Inspiration: Cysters and Fibros: Loving and Losing Friends to Cystic Fibrosis
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Cystic Fibrosis: Education and Inspiration. Wednesday, May 23, 2012. Cysters and Fibros: Loving and Losing Friends to Cystic Fibrosis. My first group of CF friends consisted of Jim, BJ, Don, Kristin and Joey. Jim, BJ, and Don had already received lung transplant when I met them via CF message boards. If you have time please see: http:/ 65redroses.livejournal.com/. May 23, 2012 at 8:12 AM. May 17, 2013 at 7:43 AM. Formerly known as: Queen of Bling. June 11, 2012 at 1:51 PM. Ive followed you on fb for awhi...
cysticfibrosisinsideout.blogspot.com
Cystic Fibrosis: Education and Inspiration: My Experience with Massive Hemoptysis
http://cysticfibrosisinsideout.blogspot.com/2011/07/hemoptysis.html
Cystic Fibrosis: Education and Inspiration. Saturday, July 16, 2011. My Experience with Massive Hemoptysis. Is a terrifying experience for a CF patient. This is my story of massive hemoptysis. February 20, 2011. The morning of my massive hemoptysis, February 20, 2011, I woke up feeling fine, and ready to enjoy a wonderful day with Michael, my sister, and beloved niece Ava. We had lunch at Carraba's Italian Grill. I have learned a lot from this experience:. Life can be taken away in an instant. Make sure ...
