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Ebstein's Anomaly - Ebstein's Anomaly Foundation

Ebstein's Anomaly Foundation

http://www.ebsteinsanomaly.org/

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CONTACTS AT EBSTEINSANOMALY.ORG

Ebsteins Anomaly Foundation

Robert Ashford

2514 F●●●●●●ll Rd.

Coop●●●●burg , Pennsylvania, 18036

US

1.61●●●●9870
ra●●●●●●@ptd.net

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Ebsteins Anomaly Foundation

Robert Ashford

2514 F●●●●●●ll Rd.

Coop●●●●burg , Pennsylvania, 18036

US

1.61●●●●9870
ra●●●●●●@ptd.net

View this contact

Ebsteins Anomaly Foundation

Robert Ashford

2514 F●●●●●●ll Rd.

Coop●●●●burg , Pennsylvania, 18036

US

1.61●●●●9870
ra●●●●●●@ptd.net

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Ebstein's Anomaly - Ebstein's Anomaly Foundation | ebsteinsanomaly.org Reviews
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1 Arden's Fight - Watch Video I was born with Ebstein's Anomaly in 1996 and had my first surgery in May of 2007. After working with many of the top surgeons
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Ebstein's Anomaly - Ebstein's Anomaly Foundation | ebsteinsanomaly.org Reviews

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Ebstein's Anomaly Foundation

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1

Marilyn Uytiepo Timmons – Ebstein's Anomaly Foundation

http://ebsteinsanomaly.org/marilyn-uytiepo-timmons

What is Ebstein’s Anomaly. Sept 26 2013 – Family of Marilyn Uytiepo Timmons to donate $12,000 to continue to fund medical research for Ebsteins Anomaly. August 29, 1947- September 2, 1992. Bryna Timmons-Majdi, Jennifer Timmons-Svacina, Gary E. Timmons and The George Timmons Family Giving (Bess Spiva Timmons Foundation). Tell Us Your Story! Congenital heart defects are America’s and every country’s #1 birth defect. The Ebsteins Anomaly Foundation.

2

What is Ebstein’s Anomaly – Ebstein's Anomaly Foundation

http://ebsteinsanomaly.org/what-is-ebsteins-anomaly

What is Ebstein’s Anomaly. What is Ebstein’s Anomaly. SIGNS & SYMPTOMS:. Like most forms of heart disease present at birth, many factors, including genetics and the environment, are thought to interact and cause Ebstein anomaly. Unfortunately, no one has identified the gene or genes that are responsible for Ebstein’s Anomaly and the environmental factors are still poorly understood. Current research is looking at these questions and other possible causes of heart disease present at birth.

3

About Us – Ebstein's Anomaly Foundation

http://ebsteinsanomaly.org/about-us

What is Ebstein’s Anomaly. Arden A. Ashford, President. Robert Ashford, Secretary. I was born with Ebstein’s Anomaly in 1996 and had my first surgery in May of 2007. After working with many of the top surgeons around the country, it’s clear that advances in new valves and new techniques in surgery will greatly improve the outcomes of kids and adults going forward. Ebstein’s Anomaly Foundation. 2514 Flint Hill Rd. Coopersburg, PA 18036. The Ebsteins Anomaly Foundation.

4

Ann Joshlyn – Ebstein's Anomaly Foundation

http://ebsteinsanomaly.org/ann-joshlyn

What is Ebstein’s Anomaly. Ann Joshlyn was born on Dec. 3, 2002 with severe Ebstein’s Anomaly. She traveled to the United States with her family in 2009 for successful surgery at the Mayo Clinic. Tell Us Your Story! Congenital heart defects are America’s and every country’s #1 birth defect. The Ebsteins Anomaly Foundation is a not-for-profit organization that funds the most promising research to advance the diagnosis, treatment and prevention of Ebstein's Anomaly and congenital heart defects.

5

How To Help – Ebstein's Anomaly Foundation

http://ebsteinsanomaly.org/how-to-help

What is Ebstein’s Anomaly. With your continued support, we can truly make a difference in the battle to understand,treat and prevent congenital heart defects! Pay by Check – Please make checks payable to. Ebstein’s Anomaly Foundation. 2514 Flint Hill Rd. Coopersburg, PA 18036. Pay by Credit Card (Click Here). The information in ebsteinsanomaly.org is not intended as a substitute for medical professional help or advice but is to be used only as an aid in understanding congenital heart disease.

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Resources | Team Lola

http://www.teamlolaonline.com/resources

Team Lola.Stay strong. Stay brave. 8220;Team Lola”. Beautiful Scars Awareness Bracelets. January 23, 2014. March 13, 2014. As much as Lola wants to. As parents, we want to. The best way we can accomplish this is by sharing our story, and sharing with others, the resources that we found most valuable. If there’s anything you wish you could find here, but don’t, let us know! We’d be happy to help. The Open Heart Companion: Preparation and Guidance for Open-Heart Surgery Recovery. Years before we even knew ...

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If you are looking for the medical condition | Ebstein's Anomalies

https://ebsteinsanomalies.wordpress.com/2010/03/28/if-you-are-looking-for-the-medical-condition

Random musings on politics, science, or whatever. Laquo; Hello world! Obama and Democrats Disappoint on Israel. If you are looking for the medical condition. Ebstein’s Anomaly is a congenital heart defect. There is information. And support groups here. And probably elsewhere) for this condition. This entry was posted on March 28, 2010 at 1:57 pm and is filed under Misc. You can follow any responses to this entry through the RSS 2.0. Feed Responses are currently closed, but you can trackback.

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What is Ebstein’s Anomaly. Arden’s Fight – Watch Video. I was born with Ebstein’s Anomaly in 1996 and had my first surgery in May of 2007. After working with many of the top surgeons around the country, it became clear to us that advances in new valves and new repair techniques in surgery would greatly improve the outcomes for patients of all ages. EAF Donates will donate an additional $20,000 to Boston’s Children’s Hospital to fund key research of the Cone Procedure. The goal of the Ebstein's Anomaly Fo...

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