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Finley Anabelle's Blog – Our CDH journeyOur CDH journey
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Our CDH journey
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Finley Anabelle's Blog – Our CDH journey | finleyanabelle.wordpress.com Reviews
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Our CDH journey
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April | 2014 | Finley Anabelle's Blog
https://finleyanabelle.wordpress.com/2014/04
For Expecting CDH parents. Finley Anabelle's Blog. Processing new information: WT1? April 26, 2014. Filed under: Choledochal Cyst. 8212; lizdooley @ 7:47 am. What hurts my heart the most is the news that Finley now has a 50% chance of having a baby with CDH herself. Now before I return to a place of, yes, remember what I just write about God being bigger? About giving my worry? About him having answered so many prayers for her already? Rejoice in the Lord always. I will say it again: Rejoice! Please join...
Results…and relief. | Finley Anabelle's Blog
https://finleyanabelle.wordpress.com/2014/08/15/resultsand-relief
For Expecting CDH parents. Finley Anabelle's Blog. Resultsand relief. August 15, 2014. 8212; lizdooley @ 2:05 pm. After a long wait and tortuous ultrasound (the man kept telling Finley it shouldn’t hurt. But it did. Her whimpering and cries of pain just about broke my heart for the millionth time for her.) We went to clinic and met with Nurse Julie. She had to run back down to get the results – but she said it’s ok. Everything in the bowels looks. 2 Responses to “Resultsand relief.”. God is so gracious!
For Expecting CDH parents | Finley Anabelle's Blog
https://finleyanabelle.wordpress.com/for-expecting-cdh-parents
For Expecting CDH parents. Finley Anabelle's Blog. For Expecting CDH parents. March 12, 2012. I have typed up my NICU advice list a few times, so I thought it might be helpful for other parents to see my NICU must-have’s list. I’ll add to this as I think of more things. Hands free pumping bra and nursing cover – so I could pump right next to Finley but could have my hands free to surf internet or read. A little notebook with inspirational verses/quotes. This was great for containment and positioning and ...
7/24 | Finley Anabelle's Blog
https://finleyanabelle.wordpress.com/2014/07/07/724
For Expecting CDH parents. Finley Anabelle's Blog. 7/24 July 7, 2014. 8212; lizdooley @ 8:09 am. 7 Responses to “7/24”. July 7, 2014 at 8:35 am. Praying for you all! So sorry you are in a place of unknowns again. Praying you can rest in HIM. July 7, 2014 at 8:38 am. Had a dream last night that she needed another surgery but for some reason Dr bliss was up visiting and he was going to do it. Wasn’t the best dream, but I remember thinking how god had provided for us again. July 7, 2014 at 9:15 am. Mass Gen...
Confirmation | Finley Anabelle's Blog
https://finleyanabelle.wordpress.com/2014/06/20/confirmation
For Expecting CDH parents. Finley Anabelle's Blog. Confirmation June 20, 2014. 8212; lizdooley @ 10:55 am. We got the call this morning. The second sample confirmed the findings that Finley has this genetic mutation on the WT1 gene (I believe she said something about Xon10 – will see when she sends me the email). Part of me had been hoping it would come back different. So here we are. A bunch of tests and follow up Doctor appointments, but I must remind myself nothing really has changed. Notify me of new...
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sandyspencebabies.blogspot.com
Sandy Spence Babies: July 2012
http://sandyspencebabies.blogspot.com/2012_07_01_archive.html
Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Friday, July 20, 2012. Http:/ sandyspencebabies.blogspot.com/2011/09/grief-ea...There...
sandyspencebabies.blogspot.com
Sandy Spence Babies: November 2012
http://sandyspencebabies.blogspot.com/2012_11_01_archive.html
Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Tuesday, November 27, 2012. So here is what the world needs to know:. Our marriage is...
sandyspencebabies.blogspot.com
Sandy Spence Babies: April 2012
http://sandyspencebabies.blogspot.com/2012_04_01_archive.html
Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Monday, April 30, 2012. I would like to invite anyone reading this note to join us as...
sandyspencebabies.blogspot.com
Sandy Spence Babies: December 2011
http://sandyspencebabies.blogspot.com/2011_12_01_archive.html
Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Saturday, December 24, 2011. Unscientific Poll on Children’s Health. So why do it?
sandyspencebabies.blogspot.com
Sandy Spence Babies: August 2013
http://sandyspencebabies.blogspot.com/2013_08_01_archive.html
Madelyn Erin Spence. Born July 5, 2011 at 3:16PM. Died of CDH related complications August 7, 2011 at 9:31PM. This blog follows our family through our pregnancy, her 34 days of life in the NICU and our lives as we learn to go on without her. It is my sincere desire that other families can learn something from us that will save or honor their CDH baby's life. A brief summary of Madelyn's CDH Story. Glossary of CDH Terms. Saturday, August 17, 2013. 6 Create an environment in which your love can be complete...
Ava~ Hope for Congenital Diaphragmatic Hernia.: December 2014
http://avaslifewithcdh.blogspot.com/2014_12_01_archive.html
Thursday, December 18, 2014. I took a few quick pictures as she was getting her x rays. She is such a pro at this! I got her antibiotic (Cefdinir) and some lunch. She fell asleep shortly after eating. I'm hoping we aren't looking at pneumonia. She has such a bad and constant cough. She will be missing out on her Christmas party at school. I do the school's yearbook so I will have to go and take pictures. I'll pick up her treats so hopefully that will make her feel better. How cute is this? Ava's visitors...
Ava~ Hope for Congenital Diaphragmatic Hernia.: Heart update
http://avaslifewithcdh.blogspot.com/2014/11/heart-update.html
Monday, November 24, 2014. Hello Ava friends and followers! Thanks for all the prayers. Ava is feeling better! We are still waiting on the holter monitoring test result. S but her blood work came back "normal". We (our local doctor and I) strongly feel that the antibiotic Zithromax caused this decrease in her heart rate. I have to stay on top of things and I thank God that He gives us tools like monitors and Mother's intuition to know that. well things just aren't right! She is an active, happy girl!
Ava~ Hope for Congenital Diaphragmatic Hernia.: Ava's Story
http://avaslifewithcdh.blogspot.com/p/avas-story.html
Ava's Beginning and Our Fight to Keep our Daughter. Every once in a while we are handed things in our life that seem impossible. We question God, we question ourselves. “Why? It doesn’t look like anything.” “Well, she said pulling him up onto her lap, Why don’t you look at it from up here.” Wow grandma it is pretty! 8221; Sometimes only God sees the finished product. We are only seeing the underneath, the mess. For the next few days I was literally a wreck. I couldn’t eat. I couldn’t ...I had grown up kn...
Ava~ Hope for Congenital Diaphragmatic Hernia.: A Change of Heart
http://avaslifewithcdh.blogspot.com/2014/11/a-change-of-heart.html
Friday, November 21, 2014. A Change of Heart. Then on Wednesday her heart rate dropped to 44. I went over to her and checked her pulse myself. I got 38 beats a minute and they were very shallow. I grew concerned. I woke her and the heart rate got better. I then let her go back to sleep but it continued to get lower and lower. The nurse asked if she wanted to remove all the stickers herself. Of course she did! There are 5 leads and the monitor itself is attached to her jeans. November 22, 2014 at 12:20 AM.
Ava~ Hope for Congenital Diaphragmatic Hernia.: Hope
http://avaslifewithcdh.blogspot.com/p/hope.html
Hope for Expectant Parents. YES the road is hard and sometimes very long. I encourage you to stay strong and have Faith. On the days that you feel beat down remember that God is with you. If God brings you to it, He can bring you through it! I've started a page on facebook called "Raising Healthy Congenital Diaphragmatic Hernia Children". We'd love to have you join the conversation. You will find SO much Hope there. See you soon! Terri Helmick (Ava's Mommy). Subscribe to: Posts (Atom). Want to Know More?
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Finley's adventures
Friday, 13 January 2017. The Wednesday after Christmas, I had to have a blood test.I know for some people this would be an easy thing to do. However I have a fear of needles and blood! Lets just say, it didn't go down very well. By the end the toilet was my best of friend as I was being sick. My parents knew I had this problem, so they told me the day before! There is something that you can do. You can have therapy which helps you with this phobia. There is always something to do. The One True Morty.
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Finley Alt Smith Scharnberg Craig Hilmes and Gaffney P.C. 699 Walnut St Ste 1900. Devoted To The Success Of Our Clients. Finley Alt Smith Scharnberg Craig Hilmes and Gaffney P.C. is an established and trusted law firm serving clients in Des Moines, Iowa. All of our attorneys are dedicated to helping clients achieve a positive outcome in a variety of practice areas. Areas of focus include:. 8226; Business and corporate law. 8226; Civil litigation. 8226; Estate planning and probate. 8226; Transportation law.
Finley Anabelle's Blog – Our CDH journey
Finley Anabelle's Blog. A labor of love…. I was busy on Facebook this morning trying to recruit volunteers for the race and I typed this plea; ”. 8220;This race is a labor of love for our family. we need lots of volunteers to make it happen – can you help? Lots of things you can do even with a kiddo! 100% of the money raised goes to helping families in the NICU in the NW, and towards research. 100%. We are entirely volunteer led and run. SIGN UP HERE TO HELP: http:/ signup.com/go/M3xRbL. June 26, 2017.
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Finley and Eddie
Sunday, October 14, 2012. The school year is in full swing! The kids are having an excellent year at their new schools! I was lucky enough to land a long term substitute job teaching kindergarten! I will also be teaching an ACT prep class at Pensacola State College one night a semester! The kids are both into swimming! Finley has competitive swim team 3 days a week and Eddie has pre competitive swim team 2 days a week! Thursday, August 9, 2012. Wednesday, July 18, 2012. Monday, June 4, 2012.
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