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OMF Patient Forum

A closed, confidential patient resource and social network from the Ocular Melanoma Foundation (OMF).

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OMF Patient Forum | forum.ocularmelanoma.org Reviews

https://forum.ocularmelanoma.org

A closed, confidential patient resource and social network from the Ocular Melanoma Foundation (OMF).

LINKS TO THIS WEBSITE

ocularmelanoma.org ocularmelanoma.org

Ocular Melanoma Foundation | OMF - Basics of OM

http://www.ocularmelanoma.org/basics.htm

About Dr. Allen. Where the Dollars Go. See A Cure Pins. Uveal melanoma represents the most common primary intraocular malignancy in adults. Although. Therapeutic implications of the emerging molecular biology of uveal melanoma (2011). Patel M, Smyth E, Chapman PB, Wolchok JD, Schwartz GK, Abramson DH, Carvajal RD. Anatomy of the Eye. Where Does It Come From? With an experienced ophthalmologist. However, there has been no conclusive evidence linking UV exposure and OM. Ocular melanoma may be more common i...

ocularmelanoma.org ocularmelanoma.org

Understanding Choroidal Nevi

http://www.ocularmelanoma.org/choroidalnevus.htm

About Dr. Allen. Where the Dollars Go. See A Cure Pins. What Is A Choroidal Nevus. A choroidal nevus is a flat, benign pigmented area that appears in the back of the eye and is basically an eye freckle. If your doctor refers to a lesion. In your eye that needs to be tracked, she is most likely talking about a choroidal nevus. The accumulation of pigmented cells that makes up a nevus occurs in a very small percentage of the population. Estimates put occurence at 2%. On the low end and 10%-13%. Choroidal n...

ocularmelanoma.org ocularmelanoma.org

Ocular Melanoma Foundation | OMF - 2015 Patient Retreat

http://www.ocularmelanoma.org/eana15.htm

About Dr. Allen. Where the Dollars Go. See A Cure Pins. The Largest Gathering of OM Patients and Caregivers in the World. OMF's flagship Eye Am Not Alone (EANA) Patient Retreat. Is returning for a second year to the world renowned Cleveland Clinic. In Cleveland, OH. In partnership with the Cole Eye Institute. And Dr. Arun Singh, this 5th annual retreat will combine broad scientific updates from uveal melanoma experts with a unique opportunity to network with and learn from fellow OM community members.

ocularmelanoma.org ocularmelanoma.org

Ocular Melanoma Foundation | OMF - Living With OM

http://www.ocularmelanoma.org/living-with-om.htm

About Dr. Allen. Where the Dollars Go. See A Cure Pins. Ocular melanoma is a lethal disease but many patients go on post-diagnosis to live long and healthy lives. Two commonalities among all of these patients who "buck the trend" of the often discouraging statistics are (i) being a proactive self-advocate and (2) living a healthy lifestyle which can involve a combination of de-stressing, excercise and diet changes. And currently there is no cure for metastatic OM. The early metastatic disease can be dete...

ocularmelanoma.org ocularmelanoma.org

Ocular Melanoma Foundation | OMF - Testing & Prognosis

http://www.ocularmelanoma.org/testing-prognosis.htm

About Dr. Allen. Where the Dollars Go. See A Cure Pins. Prognostic indicators are still not that well understood for OM although there are several predictive factors discussed in medical literature. Several factors have been identified, though, as being associated with a higher risk of developing metastatic ocular melanoma include:. Presence of orange pigment overlying the tumor. Pathological findings such as epithelioid (versus spindle) morphology is also associated with higher risk of metastasis. Recen...

ocularmelanoma.org ocularmelanoma.org

Ocular Melanoma Foundation | OMF - 2012 Patient Retreat

http://www.ocularmelanoma.org/2012eana.htm

About Dr. Allen. Where the Dollars Go. See A Cure Pins. 2012 OMF Patient Retreat Agenda.pdf. A Frank Chat About OM. Dave Eschelman, MD Interventional Radiologist, Thomas Jefferson University. Takami Sato, MD, PhD Director, Metastatic UM Program, Thomas Jefferson University. Eschelman Sato 3.2.12.pdf. Keynote by Hon. Kathleen Blanco, Former Governor of Louisiana. Primary Tumor Treatment and Prognosis:. My doctor told me I have OM. What should I be thinking about? OMF Cebulla Slides.pdf. Janice Allen, MSN,...

ocularmelanoma.org ocularmelanoma.org

Ocular Melanoma Foundation | OMF - Diagnosis

http://www.ocularmelanoma.org/diagnosis.htm

About Dr. Allen. Where the Dollars Go. See A Cure Pins. Symptoms of a primary ocular melanoma tumor typically include blurred vision, flashing lights, shadows and misting of the lens of the eye (cataract). Often times, though, no symptoms are present at all (or at least noticed by the patient) and OM may be diagnosed during a routine sight test by an optometrist or ophthalmologist. The size of the tumor is a large factor in the treatment protocol:. 10-25mm in height; greater than 5mm at the base. Photogr...

ocularmelanoma.org ocularmelanoma.org

Ocular Melanoma Foundation | OMF - 2013 Patient Retreat

http://www.ocularmelanoma.org/eana2013.htm

About Dr. Allen. Where the Dollars Go. See A Cure Pins. Thomas Jefferson University Kimmel Cancer Center. The 3rd annual Eye Am Not Alone (EANA) Patient Retreat. Was held November 1-3, 2013 at the Kimmel Cancer Center. At Jefferson University Hospital in Philadelphia, PA. Speakers includes Takami Sato MD, PhD. Carin Gonsalves, MD. Patrick O'Kane, MD. Pramila Rani Anne, MD. Carol Shields, MD. OMF Medical Director Peter Hovland, MD, PhD. And OMF Scientific Advisory Board member Colleen Cebulla, MD. Takami ...

ocularmelanoma.org ocularmelanoma.org

Ocular Melanoma Foundation | OMF - Metastatic Treatment

http://www.ocularmelanoma.org/metstreatment.htm

About Dr. Allen. Where the Dollars Go. See A Cure Pins. Treatment of Metastatic Disease. If OM spreads beyond the eye, it is metastatic. And approximately 50% of OM patients go on to develop metastatic disease. 80-90% of the time, the liver is the first site of this metastatic disease given the hematologic nature. Of OM In other words, OM spreads via the blood and not via the lymphatic system such as with cutaneous melanoma, and the liver is thus affected in this propagation. The liver is isolated and in...

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Click here to join. Sign In to OMF Patient Forum. I still can't sign in. Cookies may not be enabled in your browser. You will need to enable them in order to continue. Or sign in with:. About OMF Patient Forum. A closed, confidential patient resource and social network from the Ocular Melanoma Foundation (OMF).

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