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Living with the hope of a cure – Beth's journey with SSCD

Beth & Lyme Disease. Beth’s SSCD story. How you can help. A different kind of NY Christmas…. Posted on December 24, 2016 by Beth Rye in Uncategorized. I am now 3 weeks into my treatment! I don’t really know how to express into words how hard this trip has been. I have never felt so utterly drained and empty inside… I knew this was going to be tough but I honestly don’t think anything can prepare you for how difficult this really is. […]. Comments Off on A different kind of NY Christmas…. Posted on May 1,...

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Living with the hope of a cure – Beth's journey with SSCD | gettingbethbetter.com Reviews
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Beth & Lyme Disease. Beth’s SSCD story. How you can help. A different kind of NY Christmas…. Posted on December 24, 2016 by Beth Rye in Uncategorized. I am now 3 weeks into my treatment! I don’t really know how to express into words how hard this trip has been. I have never felt so utterly drained and empty inside… I knew this was going to be tough but I honestly don’t think anything can prepare you for how difficult this really is. […]. Comments Off on A different kind of NY Christmas…. Posted on May 1,...
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Living with the hope of a cure – Beth's journey with SSCD | gettingbethbetter.com Reviews

https://gettingbethbetter.com

Beth & Lyme Disease. Beth’s SSCD story. How you can help. A different kind of NY Christmas…. Posted on December 24, 2016 by Beth Rye in Uncategorized. I am now 3 weeks into my treatment! I don’t really know how to express into words how hard this trip has been. I have never felt so utterly drained and empty inside… I knew this was going to be tough but I honestly don’t think anything can prepare you for how difficult this really is. […]. Comments Off on A different kind of NY Christmas…. Posted on May 1,...

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Life as a jigsaw puzzle – Living with the hope of a cure

http://gettingbethbetter.com/2016/02/21/life-as-a-jigsaw-puzzle

Beth & Lyme Disease. Beth’s SSCD story. How you can help. Raquo; Life as a jigsaw puzzle. Life as a jigsaw puzzle. February 21, 2016. Comments Off on Life as a jigsaw puzzle. Right, I’m going to attempt to explain what is a very complicated jigsaw puzzle here. Me being this jigsaw puzzle! My X Ray even shows calcification of my thyroid which she said is not normal at my age. I had suspected that something was going on with my thyroid for months but was I listened too? I think that a combination of the th...

2

Living with the hope of a cure – Page 2 – Beth's journey with SSCD

http://gettingbethbetter.com/page/2

Beth & Lyme Disease. Beth’s SSCD story. How you can help. Raquo; Page 2. 9 weeks post surgery! Posted on January 13, 2016 by Beth Rye in Uncategorized. It’s been 9 weeks since I had my third major ear surgery to fix my SSCD. Despite still having ups and downs I’ve had a pretty good week! I’m continuing to see positive changes, especially with my walking and balance. My dizziness is still bad and I’m forever working against it to try and put […]. Comments Off on 9 weeks post surgery! Comments Off on Hiking.

3

Beth’s SSCD story – Living with the hope of a cure

http://gettingbethbetter.com/the-condition

Beth & Lyme Disease. Beth’s SSCD story. How you can help. Raquo; Beth’s SSCD story. Beth’s SSCD story. Superior Canal Dehiscence – Beth’s story. The “hole” is somewhere on the bone highlighted in red here. There is no ‘gold standard’ operation for this condition therefore treatment methods differs between specialists. Even after surgery some symptoms can still persist for some time. References: UCLA health – http:/ headandnecksurgery.ucla.edu/body.cfm?

4

Beth & Lyme Disease – Living with the hope of a cure

http://gettingbethbetter.com/beth-lyme-disease

Beth & Lyme Disease. Beth’s SSCD story. How you can help. Raquo; Beth & Lyme Disease. Beth & Lyme Disease. My story…from the very beginning! I was 14 when I first experienced being ill (apart from eczema/ allergies as a little one). And at 19 I made it to university to study Paediatric Nursing – my dream job! I just wanted answers. By January 2014, I was still dizzy and unable to get back to my normal life. I did manage to graduate despite the circumstances. It was a proud moment to say the least! Focus ...

5

Beth Rye the never ending Medical Mystery – Living with the hope of a cure

http://gettingbethbetter.com/2016/05/01/beth-rye-the-never-ending-medical-mystery

Beth & Lyme Disease. Beth’s SSCD story. How you can help. Raquo; Beth Rye the never ending Medical Mystery. Beth Rye the never ending Medical Mystery. May 1, 2016. Comments Off on Beth Rye the never ending Medical Mystery. It’s been a long time since I posted on here so here’s an update for those who are not on Facebook! But firstly, I just wanted to show off how good my balance has got now I can almost tip toe along this little wall! Next I’ll be running, right? Life is hard but IT IS SO MUCH EASIER.

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https://laughingwhileyourecrying.wordpress.com/2015/06

My journey into the world of migraine and idiopathic intracranial hypertension; being in chronic constant pain; battling to be diagnosed and how I've managed to stay strong and happy with only a few bumps on the way! A day in the life. About (bio and useful web links). My story so far (Migraine and IIH) and learning to live one day at a time……. Day 30 #MHAMBC #MHAM Sharing our favourite blog from the month. June 30, 2015. I have made some fantastic new migraine friends during migraine awareness month!

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May | 2015 | happyiihgirl

https://laughingwhileyourecrying.wordpress.com/2015/05

My journey into the world of migraine and idiopathic intracranial hypertension; being in chronic constant pain; battling to be diagnosed and how I've managed to stay strong and happy with only a few bumps on the way! A day in the life. About (bio and useful web links). My story so far (Migraine and IIH) and learning to live one day at a time……. The guilt of being a chronically ill mum…. May 30, 2015. May 30, 2015. Then Jan 2014 happened and this thing became constant. Zeke was 9 and Luca was 8! What a hu...

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Dizzy Me

http://www.dizzyme.eu/take-action-.html

For all of us with vestibular and/or neuro-vestibular conditions there are many ways we can take action to avoid misdiagnosis, raise awareness of effective treatments and spread the word about the need for more research. Here is a list of some of the people currently involved with taking action:. Page and my authors page. Is blogging on 'the invisible factor'. Of our disorders. Vision plays a key role in the entire system of balance. She is also a VEDA Ambassador. She is also a VEDA ambassador. Was a Cer...

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Living with the hope of a cure – Beth's journey with SSCD

Beth & Lyme Disease. Beth’s SSCD story. How you can help. A different kind of NY Christmas…. Posted on December 24, 2016 by Beth Rye in Uncategorized. I am now 3 weeks into my treatment! I don’t really know how to express into words how hard this trip has been. I have never felt so utterly drained and empty inside… I knew this was going to be tough but I honestly don’t think anything can prepare you for how difficult this really is. […]. Comments Off on A different kind of NY Christmas…. Posted on May 1,...

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