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HOPE FOR KATHERINE BELLE | Awareness for NUBPL

Awareness for NUBPL

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CONTACTS AT HOPEFORKATHERINEBELLE.COM

Glenda McCoy

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Lex●●●ton , Kentucky, 40515

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Glenda McCoy

329 Mu●●●●●●Corner

Lex●●●ton , Kentucky, 40515

United States

1.85●●●●6666
gc●●●●●●@aol.com

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Glenda McCoy

329 Mu●●●●●●Corner

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HOPE FOR KATHERINE BELLE | Awareness for NUBPL | hopeforkatherinebelle.com Reviews

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Awareness for NUBPL

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1

A Magical Vacation | HOPE FOR KATHERINE BELLE

https://hopeforkatherinebelle.com/2015/01/25/a-magical-vacation

HOPE FOR KATHERINE BELLE. Mitochondrial Complex 1 – NUBPL. January 25, 2015. Laughter is timeless, imagination has no age, and dreams are forever. After working hard on a brief from December through early January, the time came for a much-needed break. Fortunately, this aligned with availability at our friends’ condo in Sarasota and while Glenda’s mom was in Wildwood, Florida. Building Katherine a bouncy castle out of blow-up mattresses at the condo in Sarasota, and her laughter playing inside of it;.

2

Connected To The Past | HOPE FOR KATHERINE BELLE

https://hopeforkatherinebelle.com/2014/11/07/connected-to-the-past

HOPE FOR KATHERINE BELLE. Mitochondrial Complex 1 – NUBPL. Connected To The Past. November 7, 2014. Timing is everything in life. Just as those who came before us, we all have a ticking clock over our head. My most recent excursion brought tears to my eyes when I stumbled across a beautiful wooden cradle sitting silently in the corner. That cradle belonged to somebody else’s Katherine, and the bond between a parent and child is timeless. What was that baby’s story? None of us can escape death. As I close...

3

How am I doing? (Glenda) | HOPE FOR KATHERINE BELLE

https://hopeforkatherinebelle.com/2014/12/02/how-am-i-doing-glenda

HOPE FOR KATHERINE BELLE. Mitochondrial Complex 1 – NUBPL. How am I doing? December 2, 2014. KB is so sweet and innocent. She has the voice and face of an angel and the kindest disposition. Truly. I miscarried my first pregnancy and was a nervous wreck throughout Katherine’s. It was the first time I understood –. 8211; that if anything ever happened to her that a part of me would die, that it would result in my complete undoing, and I would never be the same again. She has lost her ability to climb. ...

4

How am I doing? | HOPE FOR KATHERINE BELLE

https://hopeforkatherinebelle.com/2014/11/20/how-am-i-doing

HOPE FOR KATHERINE BELLE. Mitochondrial Complex 1 – NUBPL. How am I doing? November 20, 2014. I received a call from my mom the other night asking if I was ok. She had read my post about Robin Williams’ suicide and noticed that I seemed to have low energy when I took Katherine to meet my parents for breakfast a few days earlier. She was concerned about my well being, much like I get concerned about Katherine’s. To understand until she cannot speak at all. No, I am very much not ok. The truth known by rar...

5

Her Knight Father-Daughter Dance | HOPE FOR KATHERINE BELLE

https://hopeforkatherinebelle.com/2015/02/09/her-knight-father-daughter-dance

HOPE FOR KATHERINE BELLE. Mitochondrial Complex 1 – NUBPL. Her Knight Father-Daughter Dance. February 9, 2015. Lexington has a father-daughter dance organized by the Her Knight organization. I took Katherine Belle to our second such dance this past Saturday. Here is a little update on our date:. After she was dressed, she looked at herself in the mirror and said I’m a Princess! Yes, you are indeed. NUBPL Gene – Mito Complex 1 (Diagnosed). 2 thoughts on “Her Knight Father-Daughter Dance”. You are commenti...

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nubpl.org nubpl.org

Connect | NUBPL Foundation

https://nubpl.org/patients-2

Overview of NUBPL Mutations. The more we connect with other NUBPL families, the closer we get to finding a cure. Do you have NUBPL or do you think you may? Or, are you a researcher who is interested in studying NUBPL? Us We want to hear from you. Although some families are public about their journey, we respect your desire for privacy. Katherine Belle’s Story. Age 4, Currently in EPI-743. Katherine’s whole exome sequencing results identified the following:. Cali and Ryaan’s Story. Enter your comment here.

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