Our daughter Jenny suffers from GM1 Gangliosidosis, a rare disease with degenerative neurological condition affecting children. We share her journey for awareness and to find a cure.
http://www.jennysgm1journey.org/
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Jenny's GM1 Journey | jennysgm1journey.org Reviews
https://jennysgm1journey.org
Our daughter Jenny suffers from GM1 Gangliosidosis, a rare disease with degenerative neurological condition affecting children. We share her journey for awareness and to find a cure.
jennysgm1journey.org
Partners — Jenny's GM1 Journey
http://www.jennysgm1journey.org/partners
Our partners are so important, we accomplish a lot together. Jenny's medical team at Lurie Children's Hospital of Chicago and University of Minnesota Medical Center provide wisdom and expertise in the field of lysomal storage disorders. The Cure GM1 Foundation and GM 1-2-3 shared knowledge and emotional support through our family's transition and have inspired us to take action in the Midwest. If you would like to partner with us, fill out the form below and one of our staff members will get back to you.
Take Action — Jenny's GM1 Journey
http://www.jennysgm1journey.org/take-action
You can make a difference! Please support Jenny's life journey. Your donation enables us to support Jenny, connect with other GM1 families, and raise funds for the cure. Tell your friends and family about GM1 Gangliosidosis. There's no better way to make an impact than to become an active advocate yourself. Join now, like and share on Facebook and make an impact today! Jenny's GM1 Journey, Chicago, IL, USA.
Events — Jenny's GM1 Journey
http://www.jennysgm1journey.org/new-events
Jenny's GM1 Journey, Chicago, IL, USA.
Gallery — Jenny's GM1 Journey
http://www.jennysgm1journey.org/gallery
Jenny's GM1 Journey, Chicago, IL, USA.
What We Do — Jenny's GM1 Journey
http://www.jennysgm1journey.org/what-we-do
Jenny was diagnosed with GM1 Type 2 in September 2014. Since then we have led the effort to share knowledge to raise awareness of GM1 Gangliosidosis in the Midwest states of Illinois, Missouri, Wisconsin, Indiana, Iowa, Michigan, and Minnesota. Support Jenny's life journey. Raise awareness of GM1. Support on-going research for the cure. Share our experiences and help other GM1 families cope. Every morning we are born again. What we do today matters most. . Established Jenny's GM1 Journey.org.
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Connect – Cure GM1 Foundation
http://curegm1.org/connect-2
Non-profit foundation dedicated to find a treatment and cure for GM1 Gangliosidosis. About Cure GM1 Foundation. The internet is an amazing resource to families with rare diseases. There are many wonderful families who support each other. Connect to others and learn more about those affected by GM1. Join the Facebook Gangliosidosis Group. Fill out the Cure GM1 Foundation Registry. Read about the rare and strong children affected by GM1:. A Cure for Clara. A Future for Bo. Ruby’s Butterfly Kisses. On Cure ...
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Jenny's Gift Baskets | Quality Hand-Crafted Baskets | Allentown PA
Step into spring with these delightful treats! For every fan and everyone who is still kid at heart. Give the gift of a smile to a friend or loved one. Get the perfect gift for any newborn, boy or girl. Jenny’s Gift Baskets. We offer quality hand crafted baskets, overflowing with your favorite Pepperidge Farm. Items such as Goldfish, Crackers, Tahoe or Nantucket , Milano , Chessman , and Chocolate Chunk Cookies. We can add your favorite wine or other items to make your basket great! I especially like tha...
jennysglimrandeliv - Jag skriver om vad som händer i mitt liv, kan vara om allt från mode, mina barn, inredning, musik och aktuella händelser.
Jag skriver om vad som händer i mitt liv, kan vara om allt från mode, mina barn, inredning, musik och aktuella händelser. Jaha, idag är det onsdag och det blåser och regnar ute, riktigt ruskväder som gör att man bara vill krypa ihop i soffan med en filt, en kopp varm choklad och en god bok :) Just nu läser jag, eller rättare sagt lyssnar jag på den här boken. Idag har jag jobbat över för det är så mycket på jobbet att göra men jag fick undan en hel del så det känns bra. 2013-01-30 @ 20:46:38 Permalink.
Jennys Global Enterprise
We develop and implement cutting-edge strategies, enabling companies to increase their online market share and maximize their profits. We feature ground-breaking research and a proven business system, positioning us to take advantage of current trends in the economic market place, in North America and around the world. Your life. Your way. Isn't it time to find a better balance between your life and your work? Think outside the cubicle. Ready to Explore Your Options? Why settle for ordinary?
Jenny's GM1 Journey
Love, Support, Hope for a Cure. Save Jenny on Crowdrise. We support Jenny and other children through outreach,. Fundraising, and medical research. Our daughter Jenny suffers from GM1 Gangliosidosis. GM1 is a rare disease that aggressively degenerates children's neurological condition, and is ultimately fatal. It afflicts an estimated 1 in 200,000 children globally. We share her journey for awareness and to find a cure but we cannot achieve our goals alone. Find out how you can help.
Homemade Goat Milk Soaps and Cheese - Homemade soap
Homemade Goat Milk Soaps and Cheese. All of my Homemade Products are made with Organic and Natural Ingredients! I begain my search for healthy products for myself and family. From this my heart found joy and passion for only the best I can provide. I love to research and try new things. Believe in Health from the outside in. What you put on and in your body matters! Your skin is your Largest Organ. I have found so many great sources for information the list is endless but here are a few:. And so many more.
Jenny's Golfrestaurang HB - Hem
Välkommen och tack för att du hälsar på! Nu öppnar vi restaurangen Lördagen den 25 April för säsongen 2015. Vi önskar alla såväl nya som gamla kunder hjärtligt välkomna. Ring 0226-10866, 070-5744150 eller 076-0892394 för vidare imformation. Åsbo Golfbana, Friluftsvägen 10, Avesta.
jennys gömma
Long time, no see. :) Här kommer äntligen en liten hälsning från mig. Tiden räcker inte riktigt till, till att jag vill och måste,. Så jag får se hur det blir med bloggen. Här kommer i alla fall några bilder från Majas 8-års kalas. Flera kalas blev det med släkten och med olika tårtor. Duktiga moster I gjorde en supergod ckokladtårta med "troll" på. Barnkalaset blev på Bowling Arena i år. Roligt tyckte barnen och lite skönt var det allt att slippa fixa en massa hemma,. Även om det är roligt. Det är allti...
The Good Life | one girl's search for the Good, the True and the Beautiful
One girl's search for the Good, the True and the Beautiful. Raleigh’s Birth Story – October 4, 2015. I am now a mother of two sweet boys! The first was a cesarean birth and the second was a VBAC (vaginal birth after cesarean). This is the story of my second and I’m writing it to document the experience, celebrate what happened and encourage other moms. She repeated the 2-3 hour projection several times and I buried my face in a pillow, not wanting to hear that bad news over and over again. The epidur...
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