kaelyn-a-day.blogspot.com

All the little things

All the little things. Thursday, May 14, 2015. One of the early celebration for Kaelyn's 3rd Birthday. I edited this fully, leave it in my phone and didn't upload it until recently. One of the few celebrations we had for her birthday. Happy times. Tuesday, May 5, 2015. Epilogue - Kaelyns Journey. It's been slightly more than a week. I come home from work and home's quieter than usual. It will take a while to get used to the lack of these noises. This is the new usual, it seems. It all seems like a dream.

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All the little things | kaelyn-a-day.blogspot.com Reviews

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All the little things. Thursday, May 14, 2015. One of the early celebration for Kaelyn's 3rd Birthday. I edited this fully, leave it in my phone and didn't upload it until recently. One of the few celebrations we had for her birthday. Happy times. Tuesday, May 5, 2015. Epilogue - Kaelyns Journey. It's been slightly more than a week. I come home from work and home's quieter than usual. It will take a while to get used to the lack of these noises. This is the new usual, it seems. It all seems like a dream.

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All the little things | kaelyn-a-day.blogspot.com Reviews

https://kaelyn-a-day.blogspot.com

All the little things. Thursday, May 14, 2015. One of the early celebration for Kaelyn's 3rd Birthday. I edited this fully, leave it in my phone and didn't upload it until recently. One of the few celebrations we had for her birthday. Happy times. Tuesday, May 5, 2015. Epilogue - Kaelyns Journey. It's been slightly more than a week. I come home from work and home's quieter than usual. It will take a while to get used to the lack of these noises. This is the new usual, it seems. It all seems like a dream.

INTERNAL PAGES

kaelyn-a-day.blogspot.com

1

All the little things: 3 not so easy years

http://www.kaelyn-a-day.blogspot.com/2015/02/3-not-so-easy-years.html

All the little things. Friday, February 27, 2015. 3 not so easy years. We celebrated Kaelyn’s 3rd birthday over 2 weekends. First one was with a volunteer and her friends, where Kaelyn got serenaded with singing from the visitors. The 2nd was with immediate family members where Kaelyn was a princess for the day. Every year is worth a celebration considering 2 years is the average lifespan for SMA Type 1 kids. I think for them to wake up and breath everyday is a miracle for them. We made it through anothe...

2

All the little things: April 2015

http://www.kaelyn-a-day.blogspot.com/2015_04_01_archive.html

All the little things. Tuesday, April 14, 2015. We dont wish to but we have to. I had to drop by the hospital as I have arranged to meet the parent of Chloe. To pick up some things. They are one of the family in our support group. I was there as the nurse was attempting to set the IV plug on the wrist for Chloe’s treatment. This is a weekly event for Chloe. The nurse tried 2 or 3 times to find the vein but couldn’t. I left. But they did eventually set the plug successfully on the other arm. The treatment...

3

All the little things: May 2014

http://www.kaelyn-a-day.blogspot.com/2014_05_01_archive.html

All the little things. Tuesday, May 20, 2014. Last Friday, K had her replacement of her PEG button in the Children Surgical Centre. The entire thing was over in about a minute. I feel for K. They really yanked it out and popped in the new button. I guess it was the way to go. But it done was really fast and clean. I guess it would have hurt for a longer time if you took the time to slowly twist and pull it out. The area of the button was raw for few days, but expected. For K We had the Bard button. They ...

4

All the little things: August 2014

http://www.kaelyn-a-day.blogspot.com/2014_08_01_archive.html

All the little things. Wednesday, August 27, 2014. Just as we thought K is getting well after this episode. We probably lost K for a while yesterday. She was taking a bath when she couldn't manage her secretion. Sensing problem, my helper accounted that she brought K to her bed to clear her secretions. Suction was done but very promptly, she became unresponsive, eyes closed. She had to be resuscitated. We are very thankful for my helper's response. K came around. Monday, August 25, 2014. We went though a...

5

All the little things: January 2015

http://www.kaelyn-a-day.blogspot.com/2015_01_01_archive.html

All the little things. Thursday, January 22, 2015. Kaelyn has had her endotracheal tube. ETT) removed, discharged from the ICU and has made it home. 3 weeks ago we admitted her into the hospital We have had difficulties managing her secretion and mucus while in the High dependency ward after almost a week and had to bring her to the ICU, put in the ETT. While on the ETT, it has been easier for the medical staff to manage the secretions. She seem to have grown an inch when put on her mattress for scale.

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Caelen's Quest: White Flag

http://caelenquest.blogspot.com/2015/05/white-flag.html

A test of faith and courage. How You Can Help. 1-day, 1-week and 2-weeks old filters. But the worst is its impact on the children's health. I find children in this area are more prone to fall sick, suffer from allergies etc. It is hard to ignore how much filth we pumped into our lungs everyday. C's bacterial filters for his BIPAP machine is a constant reminder. These filters meant to be changed every half yearly, I change them every week! His upper chest shrunk. Looking all boney and fragile. The hallmar...

myprincessdanielle.blogspot.com

My Princess Danielle: May 2015

http://myprincessdanielle.blogspot.com/2015_05_01_archive.html

A little life transforming many lives. . Monday, May 4, 2015. Making a difference for a special need child by students of Bukit Batok Sec Sch. Back in early month of April , we had a visitation by 4 students (Afiq, Crystal, Yongan and Bryan) and their teacher, Ms Liu from the Bukit Batok Secondary School class 3n1. They came to know about Danielle' s Story through our CNY goodies sale published on the Straits Times Newspaper in Feb 2015. Personally, I felt $1,500 is an impressive sum coming from students!

myprincessdanielle.blogspot.com

My Princess Danielle: April 2015

http://myprincessdanielle.blogspot.com/2015_04_01_archive.html

A little life transforming many lives. . Tuesday, April 28, 2015. Another interesting lesson that taught Danielle about COW. Learning about what Cow do and what cow produce. Danielle enjoys the lesson and now looking forward for the next lesson. Links to this post. Saturday, April 25, 2015. Goodby my BFF Kaelyn. On the 23rd April 2015, Kaeyln 3 yrs old went home with the Lord. To my BFF Kaeyln .every time we meet, even though we didn' t utter a word,. We already understand each other like old friends.

myprincessdanielle.blogspot.com

My Princess Danielle: Danielle playing 2 musical instrument

http://myprincessdanielle.blogspot.com/2015/05/danielle-playing-2-musical-instrument.html

A little life transforming many lives. . Sunday, May 3, 2015. Danielle playing 2 musical instrument. It started just a drum and now we expose her to the xylophone. If you like to comment but find it hard to get your comment up. Just click under Anonymous and end with your name. Look forward to your comment. Subscribe to: Post Comments (Atom). When Danielle is 6months old, she is diagnosed with. This blog started out as a way to keep our family and friends updated on her condition. View my complete profile.

myprincessdanielle.blogspot.com

My Princess Danielle: Goodby my BFF Kaelyn

http://myprincessdanielle.blogspot.com/2015/04/goodby-my-bff-kaelyn.html

A little life transforming many lives. . Saturday, April 25, 2015. Goodby my BFF Kaelyn. On the 23rd April 2015, Kaeyln 3 yrs old went home with the Lord. To my BFF Kaeyln .every time we meet, even though we didn' t utter a word,. We already understand each other like old friends. I thank God we have many sweet moments together. We held hands together, watched shows together, fight virus bravely in the same ward, cared by the most caring. Dr Chan and most lovable Dr Chong. View my complete profile. We as...

myprincessdanielle.blogspot.com

My Princess Danielle: Trip to the River Safari

http://myprincessdanielle.blogspot.com/2015/04/trip-to-river-safari.html

A little life transforming many lives. . Wednesday, April 1, 2015. Trip to the River Safari. On the 13th March 2015, Thanks to Club Rainbow that both my wife, Rebekah and my helper brought Danielle to the River Safari. Danielle had a fun time watching different type of fishes living in the Amazon River, Nile River. Expose herself to the open. A different experience she had with the last year December visit to the Sea Aquarium. Subscribe to: Post Comments (Atom). View my complete profile. Spinal Muscular ...

mylittlevera.blogspot.com

Love and a Leap of Faith: His Arthritis is Back

http://mylittlevera.blogspot.com/2015/06/his-arthritis-is-back.html

Love and a Leap of Faith. The journey of an extraordinary girl living with Trisomy 18. His Arthritis is Back. One year after he went off the injections, Daen'. S Arthritis is back in both his ankles. He had one good year. Now we are back to square one, on weekly jabs of a disease-modifying drug called Methotrexate, and the boy, now older, is not as compliant as before. The pain is most evident at night, when the muscles cool down. We ask him what's the pain level is - he says 3/10, sometimes 4/10. I know...

mylittlevera.blogspot.com

Love and a Leap of Faith: December 2008

http://mylittlevera.blogspot.com/2008_12_01_archive.html

Love and a Leap of Faith. The journey of an extraordinary girl living with Trisomy 18. After 2 days of intensive care from my mom, Vera is better today. She stayed over and was a great help - a non-stop wailing baby that's inconsolable round-the-clock can REALLY get to you. It reached a point where I just said "I give up", handed her to my mom and went to sleep. At 6am in the morning. Labels: family n friends. Falling Off The Bed. Aren't we supposed to pull up the railing when she sleeps? The past two da...

mylittlevera.blogspot.com

Love and a Leap of Faith: February 2009

http://mylittlevera.blogspot.com/2009_02_01_archive.html

Love and a Leap of Faith. The journey of an extraordinary girl living with Trisomy 18. Some of you may be wondering if Vera is cross-eyed. Well, she isn't. The reason her eyes look this way is because of the cloudy veil covering the outer halves of her eyeballs, giving the effect. In her bigger left eye, the haze has cleared. Just past the iris, and that's enough to see well. In the other eye, it still hasn't. So the little girl is relying on one eye to see. So she opens it up really big! It has been the...

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kaelyn-a-day.blogspot.com

All the little things

All the little things. Thursday, May 14, 2015. One of the early celebration for Kaelyn's 3rd Birthday. I edited this fully, leave it in my phone and didn't upload it until recently. One of the few celebrations we had for her birthday. Happy times. Tuesday, May 5, 2015. Epilogue - Kaelyns Journey. It's been slightly more than a week. I come home from work and home's quieter than usual. It will take a while to get used to the lack of these noises. This is the new usual, it seems. It all seems like a dream.

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