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Memories
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Abbey S. Meyers. Orphan Drugs: A Global Crusade. Click on the photo for a full description. There are millions of people worldwide with rare diseases who are in need of accurate diagnoses and access to appropriate treatments. Many people share their stories and opinions with me. This blog is meant to give them voice so that together we can continue the global crusade for orphan drugs to treat rare diseases. Radio programs examining the successes and controversies surrounding orphan drugs. This web site w...
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UN NGO Committee for Rare Diseases Inauguration (11 November 2016, United Nations, New York City)
https://www.abbeysmeyers.com/memories/43-un-ngo-committee-for-rare-diseases-inauguration-11-november-2016-united-nations-new-york-city
Abbey S. Meyers. Orphan Drugs: A Global Crusade. UN NGO Committee for Rare Diseases Inauguration (11 November 2016, United Nations, New York City). The Inaugural Meeting of the United Nations NGO Committee for Rare Diseases. Took place on November 11, 2016 at the UN in New York City. You can find the video of the entire conference at:. Http:/ webtv.un.org/search? Term=NGO Committee for Rare Diseases. The committee is chartered for 14 years at the United Nations. To view Abbey Meyers' speach, click here.
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A note from retired Congressman Henry Waxman, Chairman of the House Energy & Commerce Committee
https://www.abbeysmeyers.com/memories/31-a-note-from-retired-congressman-henry-waxman-chairman-of-the-house-energy-commerce-committee
Abbey S. Meyers. Orphan Drugs: A Global Crusade. A note from retired Congressman Henry Waxman, Chairman of the House Energy and Commerce Committee. A note from retired Congressman Henry Waxman, Chairman of the House Energy and Commerce Committee, who was the House author and sponsor of the Orphan Drug Act between 1980-1983. Click here for resources on rare diseases. More about Orphan Drugs:. Orphan Drugs : A Global Crusade. This web site was made possible through an unrestricted grant from.
abbeysmeyers.com
A note from retired Senator Nancy Kassebaum Baker
https://www.abbeysmeyers.com/memories/30-a-note-from-retired-senator-nancy-kassebaum-baker
Abbey S. Meyers. Orphan Drugs: A Global Crusade. A note from retired Senator Nancy Kassebaum Baker. A note from retired Senator Nancy Kassebaum Baker who was the Senate sponsor of the Orphan Drug Act between 1980-1983. Click here for resources on rare diseases. More about Orphan Drugs:. Orphan Drugs : A Global Crusade. This web site was made possible through an unrestricted grant from. Whose mission is to improve the health and quality of life of Canadians living with rare diseases.
