msgrcc.org
Mountain States Genetics Regional Collaborative Center
http://www.msgrcc.org/resources/resources.html
Moutain State Genetic Regional. Information on Public Health. Monthly Message from the Project Director. American Academy of Family Physicians (AAFP). American Academy of Pediatrics (AAP). Genetics in Primary Care Institute. National Center for Medical Home Implementation (NCMHI). American College of Medical Genetics (ACMG). Association of Public Health Laboratories (APHL). Newborn Screening Technical assistance and Evaluation Program (NewSTEPs). Association of University Centers on Disabilities.
southeastgenetics.org
Video Presentations | HRSA Southeast NBS & Genetics Collaborative
http://southeastgenetics.org/education.php
Medical Home and Transitioning. Southeast NBS and Genetics Collaborative is proud to offer the following videos, presentations and lectures free of charge. For more information on these videos and other training opportunities, please use our contact page. Videos, Lectures and Presentations. Whole Genome Sequencing – It’s Time Has Arrived. 2016 SERC-SERGG Annual Conference. Ponte Vedra Beach, FL. July 16th, 2016. Finding Pearls in a Sea of Skeletal Dysplasias. 2016 SERC-SERGG Annual Conference. 2016 SERC-...
mt.medicalhomeportal.org
Medical Home Portal - Newborn Disorders
https://mt.medicalhomeportal.org/newborn
Skip to main content. Caring and Advocating for Children and Youth. For Parents and Families. For Physicians and Professionals. Critical Congenital Heart Disease. Glutaric Acidemia Type 1. Glutaric Acidemia Type 2. Guanidinoacetate Methyltransferase (GAMT) Deficiency. Hearing Loss and Deafness. Maple Syrup Urine Disease. Severe Combined Immunodeficiency (SCID). Short-Chain Acyl-CoA Deficiency (SCADD). Short/Branched Chain Acyl-CoA Dehydrogenase Deficiency. Screening Tests and the Diagnostic Process.
heartlandcollaborative.org
Genetic Service | Newborn Screening | Arkansas, Iowa
http://www.heartlandcollaborative.org/about/mission-history
Mission & History. How We’re Organized. How Can I Participate? Professional Resources & Services. The Heartland Genetics Services Collaborative is focused on ensuring the best possible outcome for individuals with heritable disorders and optimizing the health of the population throughout the life cycle by improving understanding and awareness of genetics, expanding access to health care, and translating new findings to improve the quality of care within an eight-state region. The major purpose of the Hea...
newsteps.org
Parents and Caregivers | NewSTEPs
https://www.newsteps.org/parents-and-caregivers
Short Term Follow Up. Request a Site Visit. Every year over 4 million US newborns are screened for genetic and metabolic conditions, and hearing loss as part of a process called newborn screening. For babies who test positive for one of these conditions, rapid identification and treatment can make the difference between life and death. For additional information please visit our partner’s websites:. National Coordinating Center for the Genetic and Newborn Screening Service Collaboratives (NCC). In 2004, ...
newbornscreening.co.za
Newborn Screening - LINKS
http://newbornscreening.co.za/links.html
NEWBORN SCREENING FOR INBORN ERRORS OF METABOLISM. American College of Medical Genetics: Advice and treatment protocols (ACT sheets). Http:/ www.puk.ac.za/opencms/export/PUK/html/fakulteite/natuur/sb/nuus/metaboliese defek.html. Http:/ www.marchofdimes.com/298 834.asp. Http:/ genes-r-us.uthscsa.edu/. Http:/ www.newbornscreening.com/. Http:/ www.nichd.nih.gov/about/meetings/2006/mena/agenda.cfm. Http:/ www.nccrcg.org/. Http:/ enews.nccls.org/clsi/issues/2006-10-01/3.html.
westernstatesgenetics.org
Western States Genetics Services Collaborative
http://www.westernstatesgenetics.org/links.htm
Other Regional Genetics Collaboratives. Additional Collaborators and Organizations. OTHER REGIONAL GENETICS COLLABORATIVES. Region 1: New England Regional Genetics Group. Region 2: New York-Mid-Atlantic Consortium for Genetics and Newborn. Region 3: Southeast Regional NBS and Genetics Collaborative. Region 4: The Region 4 Midwest Genetics Collaborative. Region 5: Heartland Genetics Services Collaborative. Region 6: Mountain States Genetics Regional Collaborative Center. Baby’s First Test. Evaluation of G...
id.medicalhomeportal.org
Medical Home Portal - Newborn Disorders
https://id.medicalhomeportal.org/newborn
Skip to main content. Caring and Advocating for Children and Youth. For Parents and Families. For Physicians and Professionals. Critical Congenital Heart Disease. Glutaric Acidemia Type 1. Glutaric Acidemia Type 2. Guanidinoacetate Methyltransferase (GAMT) Deficiency. Hearing Loss and Deafness. Maple Syrup Urine Disease. Severe Combined Immunodeficiency (SCID). Short-Chain Acyl-CoA Deficiency (SCADD). Short/Branched Chain Acyl-CoA Dehydrogenase Deficiency. Screening Tests and the Diagnostic Process.
medicalhomeinfo.aap.org
National Initiatives
https://medicalhomeinfo.aap.org/national-state-initiatives/national-initiatives/Pages/default.aspx
Turn on more accessible mode. Turn off more accessible mode. Skip to main content. Technical Assistance and Support. What is Medical Home? Why is Medical Home Important? Building Your Medical Home Guide. For Families and Caregivers. Shared Plan of Care. National and State Initiatives. Medicaid and CHIP State Profiles. Application and Selection Criteria. National Indicators of Medical Home Access and Utilization. The surveys indicate the following:. The National Survey of Children with Special Health Care...
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