stx.albinism.org
Helpful Resources - stx
http://stx.albinism.org/resources/helpful-resources
NOAH Parent Resource Page. Videos, Webinars, and NOAH Youtube. How We See - NOAH Webinar. Perception is Not reality. Stares, Smirks and Shout-outs. The National Organization for Albinism and Hypopigmentation. Http:/ www.albinism.org. Http:/ parents.albinism.org/. NOAH's Education IEP Page. Http:/ iep.albinism.org/. Parent of a child with Albinism. This site has been created by a parent of a child with Albinism. The website is full of imformation relating to Albinism, as well as documenting a parents.
emersonporter.blogspot.com
The Biner Boys: February 2010
http://emersonporter.blogspot.com/2010_02_01_archive.html
Wednesday, February 17, 2010. I want a name that reflects the new attitude I'm trying to adopt: not the pessimist of the past or the unrealistic Pollyanna, but the wanna-be-hip mama that takes special needs in stride. The kind of outlook that kicks ass and takes names. (And to show you how far I've got to go - I had to google that phrase to make sure I had it right. Thank you urban dictionary! Links to this post. Wednesday, February 10, 2010. The boys try out the dog bed. Robbie and I exchanged looks and...
emersonporter.blogspot.com
The Biner Boys: June 2009
http://emersonporter.blogspot.com/2009_06_01_archive.html
Saturday, June 27, 2009. My parents gave me the best gift in the world. I noticed the glittering squares of compacted scrap metal at the recycling center, the thick patches of thistle weeds blooming misty purple, the woman in the seat next to me trying to hide three squirming kittens down the front of her shirt. In short, it was heaven. When I got home the first night, I told my mom, "I really need to find a way to get more alone time. I'm such a better mom when I come back.". Links to this post. Links t...
emersonporter.blogspot.com
The Biner Boys: November 2009
http://emersonporter.blogspot.com/2009_11_01_archive.html
Monday, November 30, 2009. Travel Log Part One. The boys test out their new digs at the Children's Inn. We arrived in DC yesterday after a mercifully short flight and quickly discovered we should have packed lighter jackets. Ah, 56 degrees is bliss. Most of the day was spent waiting for the shuttle, getting to the National Institute of Health where we were screened and I.D.-ed (is that a verb? The contact information for the drug company had been carefully cut out. I couldn't agree more. Ok, now I should...
emersonporter.blogspot.com
The Biner Boys: If you're wondering if I've heard of the Winter Brothers....
http://emersonporter.blogspot.com/2009/03/if-youre-wondering-if-ive-heard-of.html
Wednesday, March 4, 2009. If you're wondering if I've heard of the Winter Brothers. So here's a conversation that occurs nearly every time we go out in public as a family:. John Doe: Wow, they've got some really white hair! Me: Yep. It makes them very easy to spot in a crowd. PAUSE - they wait for me to explain more, but depending on my mood and energy level, I may or may not give in right away. If I don't,. John Doe: Where did they get that hair from? At this point I give in and explain. This salesman f...
emersonporter.blogspot.com
The Biner Boys: A Snowy Day
http://emersonporter.blogspot.com/2010/03/snowy-day.html
Sunday, March 7, 2010. First, I have to say that I am so grateful for all the name suggestions everyone offered this past month. I proved my theory that while I may not be exceptionally witty, I surrounded myself with people who are. I haven't been able to bring myself to pick just one yet, but I promise I will be cleaning someone's house soon enough. March 10, 2010 at 12:58 AM. Subscribe to: Post Comments (Atom). Welcome to Our World. 1 in 40,000. Then we had a second son with albinism. Make your own ba...
emersonporter.blogspot.com
The Biner Boys: "That" Kid
http://emersonporter.blogspot.com/2010/02/that-kid.html
Wednesday, February 10, 2010. The boys try out the dog bed. Robbie and I exchanged looks and then burst out laughing - not because of the story itself, but because his teacher was so matter-of-fact about him spinning before flushing the toilet. Whether it be randomly spinning before flushing, licking his knees, or walking around the house with a plastic tub on his head - it doesn't take long to get used to his oddities. Emerson's favorite activity - looking at his reflection in the school garbage can.
emersonporter.blogspot.com
The Biner Boys: August 2009
http://emersonporter.blogspot.com/2009_08_01_archive.html
Thursday, August 27, 2009. Our Tribute to Teddy. Like any blue-blooded, peace sign-toting Liberal, I love Ted Kennedy. But it seems to me like we've had a glut of celebrity deaths this year and it's making me wish there was a law limiting public memorials and tributes to ONE day per famous person. Ted Kennedy has only been gone a day and already I'm sick of hearing about him! Http:/ emersonporter.blogspot.com/2009/01/in-his-own-right.html. Links to this post. News From the Garden. Robbie is convinced he ...
emersonporter.blogspot.com
The Biner Boys: I Moved!!!
http://emersonporter.blogspot.com/2010/03/i-moved.html
Monday, March 29, 2010. I finally made the change, so please visit me at:. Http:/ www.allbino.blogspot.com/. This blog will still exist, but I will no longer update it. Subscribe to: Post Comments (Atom). Welcome to Our World. When our first son was born with albinism (OCA1), we discovered the odds were :. 1 in 40,000. Then we had a second son with albinism. Next stop: the lottery. This is a Flickr badge showing public photos and videos from chartley81. Make your own badge here. Our Family 2008 - present.
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