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Thu 28 Feb 2013. Many Mansions, Part Three. Posted by Jane under Updates. Over the next few days they slowly reduced some of the life-support measures. They closed her incision. Big machines were turned off and rolled away. Her recovery was a roller coaster of ups and downs. There were moments of terror almost every day, but she was making steady progress. How could we ever be happy again? How should we parent a child with such an uncertain future? What if I still just really have my heart set on Italy?

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Thu 28 Feb 2013. Many Mansions, Part Three. Posted by Jane under Updates. Over the next few days they slowly reduced some of the life-support measures. They closed her incision. Big machines were turned off and rolled away. Her recovery was a roller coaster of ups and downs. There were moments of terror almost every day, but she was making steady progress. How could we ever be happy again? How should we parent a child with such an uncertain future? What if I still just really have my heart set on Italy?

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Ramona Mae | ramonamae.com Reviews

https://ramonamae.com

Thu 28 Feb 2013. Many Mansions, Part Three. Posted by Jane under Updates. Over the next few days they slowly reduced some of the life-support measures. They closed her incision. Big machines were turned off and rolled away. Her recovery was a roller coaster of ups and downs. There were moments of terror almost every day, but she was making steady progress. How could we ever be happy again? How should we parent a child with such an uncertain future? What if I still just really have my heart set on Italy?

INTERNAL PAGES

ramonamae.com

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Little Tree (A Birthday Story) « Ramona Mae

http://ramonamae.com/2008/04/08/little-tree-a-birthday-story

Tue 8 Apr 2008. Little Tree (A Birthday Story). Posted by Jane under Updates. The thing I remember best about our first days with Simon is the way his birth seemed to coincide with the arrival of spring. It seemed to me that the whole earth was celebrating his arrival by blooming and warming and coming alive. Here is a story I wrote to celebrate the special way he came into our family. It’s in honor of his second birthday, which is tomorrow. 8221; So the wind blew, winter came and the Great Tree grew.

2

Milk Drive « Ramona Mae

http://ramonamae.com/milk-drive

If you are interested and find you can donate or have any information that is helpful please email milk4ramona@boydsnest.org And they will set it up so we are ready to roll when we get the go ahead. Thank you all so much for all the amazing response to this need thus far. I pray we need it all. Update Feb 19.* We have gotten so many offers for milk! So, don’t get out your pumps quite yet! Thanks again for all of your love and care for our friends. Update March 17.* It turns out that Ramona is not goi...

3

Updates « Ramona Mae

http://ramonamae.com/category/updates

Archived Posts from this Category. Thu 28 Feb 2013. Many Mansions, Part Three. Posted by Jane under Updates. Over the next few days they slowly reduced some of the life-support measures. They closed her incision. Big machines were turned off and rolled away. Her recovery was a roller coaster of ups and downs. There were moments of terror almost every day, but she was making steady progress. How could we ever be happy again? How should we parent a child with such an uncertain future? Thu 28 Feb 2013.

4

Ramona So Far « Ramona Mae

http://ramonamae.com/the-begining-of-the-story

Our daughter, Ramona Mae, was born November 26th, 2006. Her birth was a much anticipated and joyful event. But her amazing story started long before her conception. The pregnancy was pretty uneventful, unless you count non-stop vomitting and mind-blowing leg swelling. It got a little tricky towards the end as I approached parade float size and Simon approached 18 pounds. A doctor explained that she had serious heart defects: Tetralogy of Fallot. Also sometimes called DiGeorge Syndrome. The full effec...

5

To the Cath Lab! « Ramona Mae

http://ramonamae.com/2009/to-the-cath-lab

Fri 6 Nov 2009. To the Cath Lab! Posted by Jane under Updates. It’s a been a while since we’ve posted anything…which is good! Things have been pretty quiet lately. The walk in August was a big success, with over $10,000 raised and 300 walkers. We were so pleased and blessed by the experience. 8221; is heartbreaking. She has been waking up quite a bit, breaking through the sedation and gagging and coughing pitifully. It’s so sad. So let’s get that tube out, get her better, and go home! I’m glad to h...

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rollersinvegas.blogspot.com

RollersInVegas: May 2012

http://rollersinvegas.blogspot.com/2012_05_01_archive.html

We are just a family of five.three boys, a mom, a dad, a hamster, and dog. Welcome to our crazy world. Our adventures will make you laugh, cry, and pee in your pants. Tuesday, May 08, 2012. Going back to Vegas. Whew I just know that I'm over-reacting, but I'm ok with that. They get us in that week (last Thursday). Dr Ludwig listens to my concerns and then starts the echo. Then, turns to me and says , "can you be in Las Vegas in the next week or two? He needs to go in for a cath now! He said that just sin...

rollersinvegas.blogspot.com

RollersInVegas: June 2011

http://rollersinvegas.blogspot.com/2011_06_01_archive.html

We are just a family of five.three boys, a mom, a dad, a hamster, and dog. Welcome to our crazy world. Our adventures will make you laugh, cry, and pee in your pants. Thursday, June 16, 2011. Last day of preschool:(. It's the LAST day of preschool.and I don't have any pictures. My camera is broken). And I can't take pics with my cell phone or Isaac screams for it (because he wants to watch you tube videos on it). Eli turned 9 on Monday.(i'll post pics later). And I AM SO EXCITED ABOUT MOVING! As of Nov&#...

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Heart to Heart: September 2010

http://himmelberger.blogspot.com/2010_09_01_archive.html

Our family's story of living with a CHD and choosing to live life to the fullest. Wednesday, September 22, 2010. Today is our 9th wedding anniversary! That seems like a big number to me, but it also doesn't seem like we've been married for very long at all. I guess that is a good thing? I love my husband and I thank God for choosing me to be his wife. How did I get so lucky? Subscribe to: Posts (Atom). Drew is a happy 7-year-old who loves his family, his friends, and everything Star Wars! In the dark tim...

rpdeitrich.wordpress.com

May | 2008 | Rebekah's Ramblings

https://rpdeitrich.wordpress.com/2008/05

A Very Special Birthday. May 28, 2008. 8212; Bekah @ 8:16 pm. Phare turned one today! Here are some of the things I really love about her:. 1 She will happily approach and grab a live lobster, but decorative door wreaths scare her to death (see picture below if you doubt this). 2 She generally prefers peas over grapes (or any other fruit). 3 The way she simply faints from excitement over seeing flags and dogs. 4 Her curiosity, an inspiration for me especially. Happy Birthday to my little peanut! When we ...

rpdeitrich.wordpress.com

Trying Not to Worry | Rebekah's Ramblings

https://rpdeitrich.wordpress.com/2008/09/04/trying-not-to-worry

Trying Not to Worry September 4, 2008. 8212; Bekah @ 9:52 am. Of course I keep quoting that Bible verse to myself, “Who by worrying can add a single hour to his life? 8221; It’s not really helping right now, although intellectually I know it’s true. If you think of praying for us today please do, especially for the grace to handle whatever it is God has in store for us with this new little baby. I will keep you posted. 2 Responses to “Trying Not to Worry”. September 4, 2008 at 10:19 am.

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July | 2008 | Rebekah's Ramblings

https://rpdeitrich.wordpress.com/2008/07

Inhalers and Mealtime Mayhem. July 18, 2008. 8212; Bekah @ 1:30 pm. July 17, 2008. 8212; Bekah @ 4:26 pm. Sorry it has been so long, but we’ve had a picture issue, trying to move stuff elsewhere and now I feel and am completely ignorant. However, I just realized that some pictures were left on the camera and that I can handle! Noah is now in NC visiting his dad for the summer, and then onto Washington DC for a leadership conference. He won’t be home until August 15th! We miss him a lot around here!

rpdeitrich.wordpress.com

Happy Birthday to Wayne! | Rebekah's Ramblings

https://rpdeitrich.wordpress.com/2008/09/15/happy-birthday-to-wayne

Happy Birthday to Wayne! September 15, 2008. 8212; Bekah @ 8:48 am. My father-in-law Wayne celebrated his birthday on September 13th. I won’t give away his age in case that makes him uncomfortable! I’m grateful for his generosity too–he is always willing to lend a helping hand and support us in any way he can. Thank you, Wayne, for being such a special part of my life, and a blessing to all of us. Phare and Papa Wayne (July 08). 2 Responses to “Happy Birthday to Wayne! September 15, 2008 at 12:14 pm.

rpdeitrich.wordpress.com

October | 2007 | Rebekah's Ramblings

https://rpdeitrich.wordpress.com/2007/10

Wade in The Water. October 14, 2007. 8212; Bekah @ 4:21 pm. Andy and I recorded this song. Guild of Knitting Kninjas. The Art of Provision. Get a free blog at WordPress.com. Create a free website or blog at WordPress.com.

rpdeitrich.wordpress.com

October | 2008 | Rebekah's Ramblings

https://rpdeitrich.wordpress.com/2008/10

October 19, 2008. 8212; Bekah @ 1:47 pm. We went back to Wellwood Orchards a couple weeks ago to go apple picking and pet the animals. The day was glorious, peak fall colors, and a beautiful view of Mt. Ascutney. Despite the fact that we now have a gazillion apples we don’t have the time to bake with, it was worth the trip. October 17, 2008. 8212; Bekah @ 1:28 pm. Winifred and Grammie Sue. Phare and Grammie Sue in October of 2007. Guild of Knitting Kninjas. The Art of Provision.

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Thu 28 Feb 2013. Many Mansions, Part Three. Posted by Jane under Updates. Over the next few days they slowly reduced some of the life-support measures. They closed her incision. Big machines were turned off and rolled away. Her recovery was a roller coaster of ups and downs. There were moments of terror almost every day, but she was making steady progress. How could we ever be happy again? How should we parent a child with such an uncertain future? What if I still just really have my heart set on Italy?

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