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Systemic Autoinflammatory Disease (SAID) Support - Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID

Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID

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Systemic Autoinflammatory Disease (SAID) Support - Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID | saidsupport.org Reviews
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Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID
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2 menu ↓
3 about us
4 autoinflammatory alliance
5 our history
6 editor bios
7 disclaimer
8 disease specific info
9 hyper igd syndrome
10 familial mediterranean fever
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darr;,menu ↓,about us,autoinflammatory alliance,our history,editor bios,disclaimer,disease specific info,hyper igd syndrome,familial mediterranean fever,traps,crmo,videos,newsletters,patient resources,finding a diagnosis,symptom logs,education,donate now
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Systemic Autoinflammatory Disease (SAID) Support - Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID | saidsupport.org Reviews

https://saidsupport.org

Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID

INTERNAL PAGES

saidsupport.org saidsupport.org
1

Patient Resources - Systemic Autoinflammatory Disease (SAID) Support

http://saidsupport.org/patient-resources

Systemic Autoinflammatory Disease (SAID) Support. Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID. Skip to primary content. Skip to secondary content. New Name Same Mission and Goals. What Does Our Logo Symbolize? NLRC4-Associated Macrophage Activation Syndrome-Like Illness. Cryopyrin-Associated Periodic Syndromes (CAPS). Action & Advocacy. Tips and Resources for Patients (Adults and Children) on Biological Medications.

2

CRMO - Systemic Autoinflammatory Disease (SAID) Support

http://saidsupport.org/disease-specific-information/crmo

Systemic Autoinflammatory Disease (SAID) Support. Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID. Skip to primary content. Skip to secondary content. New Name Same Mission and Goals. What Does Our Logo Symbolize? NLRC4-Associated Macrophage Activation Syndrome-Like Illness. Cryopyrin-Associated Periodic Syndromes (CAPS). Action & Advocacy. Tips and Resources for Patients (Adults and Children) on Biological Medications.

3

Action & Advocacy - Systemic Autoinflammatory Disease (SAID) Support

http://saidsupport.org/action-advocacy

Systemic Autoinflammatory Disease (SAID) Support. Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID. Skip to primary content. Skip to secondary content. New Name Same Mission and Goals. What Does Our Logo Symbolize? NLRC4-Associated Macrophage Activation Syndrome-Like Illness. Cryopyrin-Associated Periodic Syndromes (CAPS). Action & Advocacy. Tips and Resources for Patients (Adults and Children) on Biological Medications.

4

Videos

http://saidsupport.org/videos

Systemic Autoinflammatory Disease (SAID) Support. Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID. Skip to primary content. Skip to secondary content. New Name Same Mission and Goals. What Does Our Logo Symbolize? NLRC4-Associated Macrophage Activation Syndrome-Like Illness. Cryopyrin-Associated Periodic Syndromes (CAPS). Action & Advocacy. Tips and Resources for Patients (Adults and Children) on Biological Medications.

5

NLRC4-Associated autoinflammatory MAS-like illness

http://saidsupport.org/disease-specific-information/1543-2

Systemic Autoinflammatory Disease (SAID) Support. Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID. Skip to primary content. Skip to secondary content. New Name Same Mission and Goals. What Does Our Logo Symbolize? NLRC4-Associated Macrophage Activation Syndrome-Like Illness. Cryopyrin-Associated Periodic Syndromes (CAPS). Action & Advocacy. Tips and Resources for Patients (Adults and Children) on Biological Medications.

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systemicjia.org systemicjia.org

Systemic JIA Resources - Systemic JIA Foundation

http://systemicjia.org/sjia-resources

Connecting the dots to find a cure for Systemic Juvenile Idiopathic Arthritis. Find Research Trials Relevant for You. Stillà â â s Disease Foundation. SAID) Support. (Their SJIA research archive is here. Systemic Onset Juvenile Idiopatic Arthritis. Find Research Trials Relevant for You.

kofiguys.wordpress.com kofiguys.wordpress.com

Koen, Carl and no more pain | This is a blog about my daily life as we travel see doctors meet new people nice and not, I run my company and try to have fun doing it I live with a brother a mom dad and dog (Hopefully to be two dogs) and I hope you enjoy re

https://kofiguys.wordpress.com/page/2

Koen, Carl and no more pain. This is a blog about my daily life as we travel see doctors meet new people nice and not, I run my company and try to have fun doing it I live with a brother a mom dad and dog (Hopefully to be two dogs) and I hope you enjoy reading my blog to it too! November 26, 2014. I would like to thank the AA for the wonderful post about. November 19, 2014. November 19, 2014. The WAVE program at my school has started and I’m happy about it! I’m hoping to get the security position! Both s...

tech-momma.blogspot.com tech-momma.blogspot.com

Tech-Momma: Resources for PFAPA

http://tech-momma.blogspot.com/2014/05/resources-for-pfapa.html

Sunday, May 18, 2014. I spend at least an evening a week looking for new information on PFAPA and anyone I can help with the tart cherry treatment. Each week when I'm reading through the Facebook group PFAPA Child I am amazed by the number of people who are now trying tart cherry and having success. I am so glad I've found a treatment that is all natural and has such wonderful results. I've got a couple of websites that I have found that may provide information for those like me who were searching.

nomidalliance.org nomidalliance.org

Autoinflammatory Alliance: Autoinflammatory Disease Information-Resources-Support

http://www.nomidalliance.org/index.php

Increasing Awareness, Care and Treatment for CAPS. And other autoinflammatory diseases. View the CAPS Guidebook. We are here to help people with autoinflammatory diseases. The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. Come to our Autoinflammatory Awareness Month Picnics/Gatherings in August! How Your Donations Help. Click here to find out more.

autoinflammatory-search.org autoinflammatory-search.org

Systemic Autoinflammatory Diseases (SAID) Database

http://www.autoinflammatory-search.org/visitors

The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. Act as a united voice worldwide to promote improved collaboration amongst healthcare professionals dealing with autoinflammatory diseases; so that all people suffering from these rare syndromes can have an accurate diagnosis and improved access to the most beneficial care and treatment available. We are also ...

autoinflammatory-search.org autoinflammatory-search.org

Systemic Autoinflammatory Diseases (SAID) Database

http://www.autoinflammatory-search.org/websites

The Registry of Hereditary Auto-inflammatory Disorders Mutations. Http:/ fmf.igh.cnrs.fr/ISSAID/infevers. The Diagnostic Score for Periodic Fever - Online diagnostic tool, resources, and flow chart for pediatricians to use. Https:/ www.printo.it/periodicfever/index.asp. Moderated online international patient and medical community, including communities for CAPS, TRAPS, FMF, and Behçets a NORD and EURORDIS initiative. (The Autoinflammatory Alliance is a moderator for some of these communities.). The HUGO ...

tech-momma.blogspot.com tech-momma.blogspot.com

Tech-Momma: May 2014

http://tech-momma.blogspot.com/2014_05_01_archive.html

Friday, May 30, 2014. Sunday, May 18, 2014. I spend at least an evening a week looking for new information on PFAPA and anyone I can help with the tart cherry treatment. Each week when I'm reading through the Facebook group PFAPA Child I am amazed by the number of people who are now trying tart cherry and having success. I am so glad I've found a treatment that is all natural and has such wonderful results. PFAPA Child on Facebook. Systemic Autoinflammatory Disease Support. US National LIbrary of Medicine.

autoinflammatory.org autoinflammatory.org

Autoinflammatory Alliance: Autoinflammatory Disease Information-Resources-Support

http://www.autoinflammatory.org/index.php

Increasing Awareness, Care and Treatment for CAPS. And other autoinflammatory diseases. View the CAPS Guidebook. We are here to help people with autoinflammatory diseases. The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with autoinflammatory diseases. Come to our Autoinflammatory Awareness Month Picnics/Gatherings in August! How Your Donations Help. Click here to find out more.

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Systemic Autoinflammatory Disease (SAID) Support - Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID

Systemic Autoinflammatory Disease (SAID) Support. Welcome to the Autoinflammatory Alliance blog for discussing all things involving awareness, advocacy, care and thriving with SAID. Skip to primary content. Skip to secondary content. New Name Same Mission and Goals. What Does Our Logo Symbolize? NLRC4-Associated Macrophage Activation Syndrome-Like Illness. Cryopyrin-Associated Periodic Syndromes (CAPS). Action & Advocacy. Tips and Resources for Patients (Adults and Children) on Biological Medications.

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