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Shoutout About ME — Latest news, opinion and extensive resources on ME/CFS

Latest news, opinion and extensive resources on ME/CFS

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Shoutout About ME — Latest news, opinion and extensive resources on ME/CFS | shoutoutaboutme.com Reviews

https://shoutoutaboutme.com

Latest news, opinion and extensive resources on ME/CFS

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1

Lyme Videos – Shoutout about ME

http://www.shoutoutaboutme.com/category/videos/lyme-videos

Concerns about Aust Xbox activity trial for CFS. Concerns about Aust Xbox activity trial for CFS. Emerge Aust calls for release of PACE data. Emerge Aust calls for release of PACE data. New CBT and GET threat for Aust CFS patients. New CBT and GET threat for Aust CFS patients. A patient responds to NIH request for input. A patient responds to NIH request for input. NIH: time for real scientists to study ME/CFS. NIH: time for real scientists to study ME/CFS. IOM ignored neurological abnormalities in ME/CFS.

2

2015 – Shoutout about ME

http://www.shoutoutaboutme.com/2015

Concerns about Aust Xbox activity trial for CFS. Concerns about Aust Xbox activity trial for CFS. Emerge Aust calls for release of PACE data. Emerge Aust calls for release of PACE data. New CBT and GET threat for Aust CFS patients. New CBT and GET threat for Aust CFS patients. A patient responds to NIH request for input. A patient responds to NIH request for input. NIH: time for real scientists to study ME/CFS. NIH: time for real scientists to study ME/CFS. IOM ignored neurological abnormalities in ME/CFS.

3

Guide for ME families dispels myths – Shoutout about ME

http://www.shoutoutaboutme.com/news/guide-for-me-families-counters-false-allegations

Concerns about Aust Xbox activity trial for CFS. Concerns about Aust Xbox activity trial for CFS. Emerge Aust calls for release of PACE data. Emerge Aust calls for release of PACE data. New CBT and GET threat for Aust CFS patients. New CBT and GET threat for Aust CFS patients. A patient responds to NIH request for input. A patient responds to NIH request for input. NIH: time for real scientists to study ME/CFS. NIH: time for real scientists to study ME/CFS. IOM ignored neurological abnormalities in ME/CFS.

4

Fibromyalgia Videos – Shoutout about ME

http://www.shoutoutaboutme.com/category/videos/fibromyalgia-videos

Concerns about Aust Xbox activity trial for CFS. Concerns about Aust Xbox activity trial for CFS. Emerge Aust calls for release of PACE data. Emerge Aust calls for release of PACE data. New CBT and GET threat for Aust CFS patients. New CBT and GET threat for Aust CFS patients. A patient responds to NIH request for input. A patient responds to NIH request for input. NIH: time for real scientists to study ME/CFS. NIH: time for real scientists to study ME/CFS. IOM ignored neurological abnormalities in ME/CFS.

5

ME patients stage Bethesda protests – Shoutout about ME

http://www.shoutoutaboutme.com/news/us-disabled-hold-protests-at-bethesda

Concerns about Aust Xbox activity trial for CFS. Concerns about Aust Xbox activity trial for CFS. Emerge Aust calls for release of PACE data. Emerge Aust calls for release of PACE data. New CBT and GET threat for Aust CFS patients. New CBT and GET threat for Aust CFS patients. A patient responds to NIH request for input. A patient responds to NIH request for input. NIH: time for real scientists to study ME/CFS. NIH: time for real scientists to study ME/CFS. IOM ignored neurological abnormalities in ME/CFS.

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CFSAC Comments August 2015: Ampligen Price Increase on Shaky Ground | Thoughts About M.E.

https://thoughtsaboutme.com/2015/08/14/cfsac-comments-august-2015-ampligen-update

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. 267% Price Increase for Ampligen. Oops, they did it again! CFSAC violates FACA →. CFSAC Comments August 2015: Ampligen Price Increase on Shaky Ground. August 14, 2015. I looked into the Ampligen issue–the exorbitant 267% price increase by Hemispherx. CFSAC Meeting August 18. Public Comments by Jeannette Burmeister. Submitted on August 13, 2015. Below are two letters I sent to Dr. Woodcock on August 11, 2015 and today (August 13, 2015) wit...

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CFS | Thoughts About M.E.

https://thoughtsaboutme.com/tag/cfs

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability Benefits. March 21, 2016. Many ME/CFS* sufferers are covered by employer-sponsored long-term disability ( LTD ) policies. These policies almost universally limit LTD benefits to 24 months for disability caused or even just contributed to by a mental/nervous disorder. The following language is taken from a current policy … Continue reading →. February 21, 2016.

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Chronic Fatigue Syndrome Advisory Committee | Thoughts About M.E.

https://thoughtsaboutme.com/tag/chronic-fatigue-syndrome-advisory-committee

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Tag Archives: Chronic Fatigue Syndrome Advisory Committee. Holding HHS Accountable for Unrelenting and Unrepentant Legal Violations. September 8, 2015. Many members of the community have called out HHS for legal violations over the years, such as Dr. Mary Ann Fletcher and Ms. Eileen Holderman confronting Dr. Nancy Lee, DFO of CFSAC, for her attempted intimidation of CFSAC members by … Continue reading →. Federal Advisory Committee Act. This i...

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MEGA Patient Advisory Group – spoonseekerdotcom

https://spoonseeker.com/2016/12/20/mega-patient-advisory-group

Life with too few spoons. MEGA Patient Advisory Group. December 20, 2016. For better or worse, I found out today I’m on the MEGA patient advisory group. ‘Mixed feelings’ is the best way to describe my reaction. I ‘m pleased that I may have a chance to make a difference to the study but aware that it might not be easy. I will do my best…. 7 thoughts on “ MEGA Patient Advisory Group. December 20, 2016 at 6:39 pm. Let’s hope you can help them see sense. December 20, 2016 at 6:40 pm. Liked by 1 person. You c...

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CFSAC June 2014 | Thoughts About M.E.

https://thoughtsaboutme.com/cfsac-june-2014

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. My Oral June 2014 CFSAC Testimony. June 16, 2014). Edward Burmeister’s Oral June 2014 CFSAC Testimony Presented by Jeannette Burmeister. June 16, 2014). Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Email (Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. Follow Blog via Email.

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Jeannette Burmeister | Thoughts About M.E.

https://thoughtsaboutme.com/author/peninsulajay

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Author Archives: Jeannette Burmeister. Keep an Eye on Your Walitt: NIH Study Poses Dramatic Risk to Long-Term Disability Benefits. March 21, 2016. If chronic fatigue syndrome/myalgic encephalomyelitis is all in your head it’s only because your head is part of your body. NIH intramural study of post-infectious ME/CFS. Standing Up to Coyne and Against Unfair Treatment of ME Advocates. March 4, 2016. Coyne of the Realm. Prof James C Coyne. Pleas...

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CFSAC October 2012 | Thoughts About M.E.

https://thoughtsaboutme.com/cfsac-october-2012

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. My CFSAC Testimony (October 2012). Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Email (Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out. Follow Blog via Email. Twenty...

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Dr. Woodcock | Thoughts About M.E.

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Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Tag Archives: Dr. Woodcock. CFSAC Comments August 2015: Ampligen Price Increase on Shaky Ground. August 14, 2015. I looked into the Ampligen issue–the exorbitant 267% price increase by Hemispherx–some more. Here is one thing that patients who are currently enrolled in the trial can do. They can contact Schulman Associates, the Institutional Review Board (IRB) for this … Continue reading →. Chronic Fatigue Syndrome Advisory Committee. Has the ...

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CFSAC December 2013 | Thoughts About M.E.

https://thoughtsaboutme.com/cfsac-december-2013

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. My December 2013 Video CFSAC Testimony. December 11, 2013). Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Email (Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out.

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CFSAC | Thoughts About M.E.

https://thoughtsaboutme.com/cfsac

Thoughts About M.E. Myalgic Encephalomyelitis (M.E.) Advocacy. Http:/ www.hhs.gov/advcomcfs/. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Email (Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out. You are commenting using your Google account. ( Log Out. Notify me of new posts via email.

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Friday, 26 June 2015. Old Movie Series: PART 2. IT IS PART 2! Hello in Malay) I have finished my mid-years, finally! For 2 days i don't have to worry about last minute studying or revisions! Pathetic- 2 days i know). In the midst of revision and exams in the morning, i managed to give myself about an hour or 2 to relax. Watching rom com movies is what relax is for me. Second movie i have watched is, "10 THINGS I HATE ABOUT YOU". Gifs from : laadystoneheart. So this is part 2! Part 3 out soon! Zbogum (goo...

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Shout Out About Bladder Cancer Campaign

Help make some noise. Bladder cancer recurs more often than any other cancer. It is the most expensive cancer for the NHS to treat yet receives only 0.6% of cancer research funding and the main treatments haven’t changed for 35 years. Every year in the UK over 10,000 people will be diagnosed with this cancer, and half that number will die from the disease. Don’t you think it’s time to make some noise? Help us shout out about bladder cancer! To increase knowledge of the causes and symptoms to save lives.

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Shoutout About ME — Latest news, opinion and extensive resources on ME/CFS

Hemispherx ramps up price of Ampligen by 267%. Europe gets early access to Ampligen. Jason: Are ME and CFS different illnesses? Gene study separates depression from CFS. Chu: Post-Exertional Malaise: History, Characteristics. Rowe: Inducing Post-Exertional Malaise in ME/CFS. From Ramsay to SEID – defining ME and CFS. Phase II Cyclophosphamide trial for ME gets under way. Phase II Cyclophosphamide trial for ME gets under way. Approval sought for Ampligen trials in Australia. Non-celiac gluten sensitivity ...

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