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ME Stories | Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. March 27, 2016. I first saw a GP for post-exertional malaise about 6 months after my symptoms started following a nasty virus. She told me it was probably the menopause despite me having no other symptoms of this and. Read more →. They told me to do some exercise. March 27, 2016. Read more →. December 3, 2015. Read more →. Tale of an Invisible Illness. December 2, 2015. Read more →. November 11, 2015. I'm still und...

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ME Stories | Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome | stories.meaction.net Reviews

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Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. March 27, 2016. I first saw a GP for post-exertional malaise about 6 months after my symptoms started following a nasty virus. She told me it was probably the menopause despite me having no other symptoms of this and. Read more →. They told me to do some exercise. March 27, 2016. Read more →. December 3, 2015. Read more →. Tale of an Invisible Illness. December 2, 2015. Read more →. November 11, 2015. I'm still und...

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ME Stories | Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome | stories.meaction.net Reviews

https://stories.meaction.net

Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. March 27, 2016. I first saw a GP for post-exertional malaise about 6 months after my symptoms started following a nasty virus. She told me it was probably the menopause despite me having no other symptoms of this and. Read more →. They told me to do some exercise. March 27, 2016. Read more →. December 3, 2015. Read more →. Tale of an Invisible Illness. December 2, 2015. Read more →. November 11, 2015. I'm still und...

INTERNAL PAGES

stories.meaction.net

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Submit your story | ME Stories

http://stories.meaction.net/submit-your-story

Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. Thank you so much for the generosity of sharing your story so that others might learn from it and still others might heal from it. All of the fields below are optional. For example, you can submit your post with or without a title. You can submit only an image. You do not need to provide an author name if you do not want to be public; if left blank it will default to "anonymous.". Thank you for sharing your story!

2

Graded exercise | ME Stories

http://stories.meaction.net/category/graded-exercise

Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. I did Graded Exercise seven years ago and I haven’t recovered yet. November 11, 2015. Shortly after being diagnosed with CFS, two things happened: One, my doctor recommended I reduce my working hours to half time and two, she recommended Graded Exercise Therapy (GET). Do exercise you love! She encouraged. "What do you love to …. Graded Exercise Therapy Ruined ME. November 10, 2015. The little train wreck.

3

they told me to do some exercise | ME Stories

http://stories.meaction.net/2016/03/27/they-told-me-to-do-some-exercise

Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. They told me to do some exercise. March 27, 2016. Larr; Previous Post. Next Post →.

4

Tale of an Invisible Illness | ME Stories

http://stories.meaction.net/2015/12/02/tale-of-an-invisible-illness

Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. Tale of an Invisible Illness. December 2, 2015. Today is my 18 month bed-iversary. I've spent at least 20 hours of the day in bed for the past 18 months. (I'm "celebrating" with chocolate mud cake and a soy latte a bit later, in case you're wondering). Then she then asked:. How do I go at the shops? Would I use a mobility scooter if I went to the shops? What if I want something from the shops? I understand that she...

5

Medicine | ME Stories

http://stories.meaction.net/category/medicine

Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. One small step for woman, one giant step for ME sufferer. November 4, 2015. I'm still undiagnosed. 20 years. I'm an all or nothing person. I go until I fall; or seizure (tonic clonic fits from extreme exertion) When I'm well I can't imagine being sick. When I'm sick I can't imagine what it's ….

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News | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

http://www.meaction.net/news

Middle East & Africa. Reports and Fact Sheets. What is M.E? Canada: officials turn down grant app because CFS “isn’t real”. August 26, 2016. For many months the Canadian Institutes of Health Research, the Canadian equivalent to the NIH, has advised that: "The IMHA [the Institute of Musculoskeletal Health and Arthritis] has committed to supporting the creation of a national network for translational research in ME/CFS in 2016-2017. This network will facilitate capacity building . August 18, 2016. A tribun...

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Login | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

http://www.meaction.net/submit-news

Middle East & Africa. Reports and Fact Sheets. What is M.E? Login to your #MEAction account. Only fill in if you are not human. Keep me signed in. Use this page to access all of the meaction.net features: manage your profile, submit news, and post in the Ideas Center. Your my.meaction.net. Login may be differ. You will need to log in under a separate registration to launch a petition. Or join a local group. Join a global movement for health equality. Reports and Fact Sheets. What is M.E?

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Start a Petition | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

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Middle East & Africa. Reports and Fact Sheets. What is M.E? Want to start your own petition? Anyone can start a new individual petition. Submit your idea for a petition campaign. If you have your own concept for a petition campaign, you can suggest your idea by filling out this form. What is a petition campaign? Browse all current petitions. Launch a new petition. How to launch a Petition on #MEAction. How the Dutch petition got 56,000 signatures. How to organize a world-changing petition.

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Login | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

http://www.meaction.net/promote-your-action

Middle East & Africa. Reports and Fact Sheets. What is M.E? Login to your #MEAction account. Only fill in if you are not human. Keep me signed in. Use this page to access all of the meaction.net features: manage your profile, submit news, and post in the Ideas Center. Your my.meaction.net. Login may be differ. You will need to log in under a separate registration to launch a petition. Or join a local group. Join a global movement for health equality. Reports and Fact Sheets. What is M.E?

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Browse Actions: Arts & Letters | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

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Middle East & Africa. Reports and Fact Sheets. What is M.E? Browse Actions: Arts & Letters. Arts & Letters. New One Click Campaign. Urgent: Take part in the US Congressional Call to Action. August 25, 2016. Sign the e-card for Alem Matthees! August 22, 2016. Contribute clips to L.A.’s #MillionsMissing Video. July 21, 2016. Last October, I released the short documentary The Last Great Medical Cover Up to a widely receptive audience. Now, I am looking to alter and expand the film in time to promote Rou...

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Facebook tiles | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

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Middle East & Africa. Reports and Fact Sheets. What is M.E? CLICK FOR THE FULL SIZE IMAGE. Save to your computer. Then upload it to your Facebook or Twitter page and share! Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. Notify me of follow-up comments by email. Join a global movement for health equality. Reports and Fact Sheets. What is M.E?

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Create a new action | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

http://www.meaction.net/create-an-action

Middle East & Africa. Reports and Fact Sheets. What is M.E? Create a new action. Add your voice to a petition and leverage the power of this community. Search for open petitions or learn how to launch your own. Search for events in your area or learn how to organize your own #MEAction event. Have you already started a petition. Have you been approved for an event campaign. Or do you have a preexisting action hosted on your own webpage that you would like us to share? Submit news or opinion.

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Petition organizing tools | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

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Middle East & Africa. Reports and Fact Sheets. What is M.E? Tools for organizing world-changing petitions. How to take the US funding equality petition into the streets. How to launch a petition on #MEAction. Here’s how and why you should launch a petition on #MEAction. With the help of many dedicated patients and their loved ones, The Dutch ME/CFS Association (ME/CVS Vereniging) were able to gather 56,000 signatures for their petition for increased research. Here’s how. August 10, 2015 at 11:49 am.

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How To Guides | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

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Middle East & Africa. Reports and Fact Sheets. What is M.E? Learn how to best leverage the #MEAction platform to host or promote your next action. How to Organize a World-Changing Petition. Consider your target It's only natural that targets might be institutions. Try to address your petition to specific individuals who have . Promote your Action at #MEAction: Why and How. Why should you promote your action at #MEAction? Create a Petition at #MEAction: Why and How. One comment on “ How To Guides. What is...

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Volunteer | #MEAction – A platform for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome activism

http://www.meaction.net/volunteer

Middle East & Africa. Reports and Fact Sheets. What is M.E? We are always looking for patient volunteers and healthy ME allies to join our team. If you are interested in helping, please get in touch via this form. 8211; help us develop and coordinate a strategy for a more informed ME community. 8211; help us organize and expand the capacity of the ME community. 8211; help us write news and opinion content for #MEAction and join a vibrant community of patient activists. August 29, 2016. August 25, 2016.

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ME Stories | Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

Share your experiences living with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. March 27, 2016. I first saw a GP for post-exertional malaise about 6 months after my symptoms started following a nasty virus. She told me it was probably the menopause despite me having no other symptoms of this and. Read more →. They told me to do some exercise. March 27, 2016. Read more →. December 3, 2015. Read more →. Tale of an Invisible Illness. December 2, 2015. Read more →. November 11, 2015. I'm still und...

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