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TheUnexpectedJourney

Wednesday, December 2, 2015. Let me recap a year. Time sure flies when your busy! Next thing you know it's been a whole year since your last blog update. Sorry friends and family, new and old! For those of you who are new to Audrey let me give you a brief introduction. She is a sweet six year old girl who loves anything pink and sparkly! March started off great! Her best friend was staying with us. We had a couple snow days which were great fun. Things were going well. Still dealing with her ...My sweet ...

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TheUnexpectedJourney | sweetasmom.blogspot.com Reviews
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Wednesday, December 2, 2015. Let me recap a year. Time sure flies when your busy! Next thing you know it's been a whole year since your last blog update. Sorry friends and family, new and old! For those of you who are new to Audrey let me give you a brief introduction. She is a sweet six year old girl who loves anything pink and sparkly! March started off great! Her best friend was staying with us. We had a couple snow days which were great fun. Things were going well. Still dealing with her ...My sweet ...
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TheUnexpectedJourney | sweetasmom.blogspot.com Reviews

https://sweetasmom.blogspot.com

Wednesday, December 2, 2015. Let me recap a year. Time sure flies when your busy! Next thing you know it's been a whole year since your last blog update. Sorry friends and family, new and old! For those of you who are new to Audrey let me give you a brief introduction. She is a sweet six year old girl who loves anything pink and sparkly! March started off great! Her best friend was staying with us. We had a couple snow days which were great fun. Things were going well. Still dealing with her ...My sweet ...

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sweetasmom.blogspot.com sweetasmom.blogspot.com
1

TheUnexpectedJourney: New year, new hope

http://sweetasmom.blogspot.com/2014/01/new-year-new-hope.html

Saturday, January 4, 2014. New year, new hope. Energy wise, Audrey is doing amazing! When she is out of the hospital and feeling good I feel like I have my little girl back. She is feeling so much better. Even though she's not tolerating much feeding wise, she is so much happier and feels so much better, her surgery was definitely a success! Best ostomy belt ever! First time swinging in over a year! She loves her princesses! Best big brother ever! She was deliriously happy (literally). New year, new hope.

2

TheUnexpectedJourney: February 2014

http://sweetasmom.blogspot.com/2014_02_01_archive.html

Sunday, February 23, 2014. February: The month we lost. It's been very difficult to tease out which symptoms belong to which diagnosis. Adrenal insufficiency in a child like Audrey is, of course, difficult to treat an manage because her body already doesn't handle stress in the best of circumstances. This will be an ongoing ordeal requiring patience from me and her medical team as we learn how to support her in this process. Subscribe to: Posts (Atom). February: The month we lost. View my complete profile.

3

TheUnexpectedJourney: November 2013

http://sweetasmom.blogspot.com/2013_11_01_archive.html

Monday, November 25, 2013. We went to pre-op and spoke to a dizzying number of people. Going over the conditional plan, allergies and mitochondrial requirements with the OR nurse, the pediatric surgeon, the urologist, the anesthesia team and the pain team. Everyone seemed well read on Audrey and I was as comfortable as I could be handing over my daughter. Surgery was supposed to be 2.5-3 hours. Let the healing begin! Back from OR, there's no more room on this tummy! Post Op Day 1-. Audrey willing partici...

4

TheUnexpectedJourney: It's been awhile!

http://sweetasmom.blogspot.com/2014/08/its-been-awhile.html

Tuesday, August 5, 2014. Once again crazy life has detained me so it's been awhile since my last update. Many new things and many things remain unchanged. The good news is, Audrey has only been inpatient once since my last blog! She went 90 days to the date! That's the longest she's been out of the hospital since January 2012. This is definitely a trend I hope will continue. Audrey's endocrinologist has also been hard working. She has thought "outside-the-box" for Audrey and she is now using a insuli...

5

TheUnexpectedJourney: August 2014

http://sweetasmom.blogspot.com/2014_08_01_archive.html

Tuesday, August 5, 2014. Once again crazy life has detained me so it's been awhile since my last update. Many new things and many things remain unchanged. The good news is, Audrey has only been inpatient once since my last blog! She went 90 days to the date! That's the longest she's been out of the hospital since January 2012. This is definitely a trend I hope will continue. Audrey's endocrinologist has also been hard working. She has thought "outside-the-box" for Audrey and she is now using a insuli...

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mi-RARE-cles: March 2013

http://mi-rare-cles.blogspot.com/2013_03_01_archive.html

Monday, March 18, 2013. My daughter is diagnosed with Complex I mitochondrial disease. She was born healthy and full term with out any suspected problems. After a severe bout of pneumonia at 16 months she began to show signs that something was wrong. Audrey takes over 18 doses of medications each day. She is on the standard mito cocktail of carnitine, Co Q 10 and riboflavin, plus many others. She is also on TPN 24 hours a day and some feeding through her j-tube. Curemito.org, mitoaction.com. Pierre-Robin...

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TheUnexpectedJourney

Wednesday, December 2, 2015. Let me recap a year. Time sure flies when your busy! Next thing you know it's been a whole year since your last blog update. Sorry friends and family, new and old! For those of you who are new to Audrey let me give you a brief introduction. She is a sweet six year old girl who loves anything pink and sparkly! March started off great! Her best friend was staying with us. We had a couple snow days which were great fun. Things were going well. Still dealing with her ...My sweet ...

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