thinkporphyria.org thinkporphyria.org

thinkporphyria.org

Think Porphyria -

This website features a handy overview about the diagnosis, the testing and the treatment of Acute Porphyrias. Orphan Europe (Recordati Group) - 2014. Orphan Europe (Recordati Group) - 2014. This popup will be closed in:. Continue to the website.

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Orphan Europe

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Think Porphyria - | thinkporphyria.org Reviews

https://thinkporphyria.org

This website features a handy overview about the diagnosis, the testing and the treatment of Acute Porphyrias. Orphan Europe (Recordati Group) - 2014. Orphan Europe (Recordati Group) - 2014. This popup will be closed in:. Continue to the website.

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thinkporphyria.org thinkporphyria.org
1

Think porphyria - Think Porphyria

http://www.thinkporphyria.org/en/acute-porphyrias

To watch the video in another language, please click on one of the links below:. What is acute porphyria? The porphyrias are a group of metabolic disorders that arise from disturbances on the haem biosynthetic pathway. The acute hepatic porphyrias, include acute intermittent porphyria, variegate porphyria and hereditary coproporphyria. ,. Acute attacks of porphyria are uncommon and are associated with a non-specific clinical presentation so making diagnosis difficult. What are the symptoms? Symptoms usua...

2

Patients' stories - Think Porphyria

http://www.thinkporphyria.org/patients-stories

This patients’ stories video is a summary of the testimonials of Desiree, Liz, Sue, Karina (4 acute intermittent porphyria. Patients) and John (Variegate porphyria. The full 5 testimonials are available on this link. Orphan Europe (Recordati Group) - 2014. Orphan Europe (Recordati Group) - 2014.

3

About Orphan Europe - Think Porphyria

http://www.thinkporphyria.org/en/about-orphan-europe

Orphan Europe, A unique pharmaceutical company. Part of the Recordati. Group, is a unique pharmaceutical company focusing on the research and development of orphan medicinal products. Since 1990 we have used big thinking and extensive know-how on behalf of people affected by rare diseases. Patients and their families are central to our planning, our thinking and our actions. Recordati orphan drugs is present in the USA through its company Recordati Rare Disease. Big thinking for people with rare diseases.

4

Application - Think Porphyria

http://www.thinkporphyria.org/en/application

You can download the “Think Porphyria”. Orphan Europe (Recordati Group) - 2014. Orphan Europe (Recordati Group) - 2014.

5

Think Porphyria -

http://www.thinkporphyria.org/sk

This website features a handy overview about the diagnosis, the testing and the treatment of Acute Porphyrias. Orphan Europe (Recordati Group) - 2014. Orphan Europe (Recordati Group) - 2014. This popup will be closed in:. Continue to the website.

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orphan-europe.com orphan-europe.com

Acute porphyria | Orphan Europe

http://www.orphan-europe.com/patients-and-families/acute-porphyria

Skip to main content. Big thinking for people with rare diseases. A growing international presence. At the forefront of rare disease policy. Hyperammonaemia due to NAGS, IVA, MMA or PPA. Vitamin E deficiency in chronic cholestasis. Foods for Special Medical Purposes. Urea Cycle Disorders Consortium. Orphan Europe Volunteer Programme. Support to patient organisations. Compliance - our guiding principles. Votre navigateur ne supporte pas la video. Vous pouvez la télécharger cependant : video/mp4. Most peop...

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This website features a handy overview about the diagnosis, the testing and the treatment of Acute Porphyrias. Orphan Europe (Recordati Group) - 2014. Orphan Europe (Recordati Group) - 2014. This popup will be closed in:. Continue to the website.

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