thrivingwithneurofibromatosis.blogspot.com

Thriving with Neurofibromatosis

How NF Affects MY kids. Who Is Kristi Hopkins? Monday, July 27, 2015. We ALL desire that human connection. The feeling when you connect with someone who TRULY gets it. It's a rare thing in the world of Neurofibromatosis. And I have yet to meet someone - that sticks around long enough to even begin to relate to what it's really like having NF. We're ALL different. We all have our struggles. Anyway.back to what this blog post was meant to be.That human connection. When I see someone who has NF walking arou...

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How NF Affects MY kids. Who Is Kristi Hopkins? Monday, July 27, 2015. We ALL desire that human connection. The feeling when you connect with someone who TRULY gets it. It's a rare thing in the world of Neurofibromatosis. And I have yet to meet someone - that sticks around long enough to even begin to relate to what it's really like having NF. We're ALL different. We all have our struggles. Anyway.back to what this blog post was meant to be.That human connection. When I see someone who has NF walking arou...

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Thriving with Neurofibromatosis | thrivingwithneurofibromatosis.blogspot.com Reviews

https://thrivingwithneurofibromatosis.blogspot.com

How NF Affects MY kids. Who Is Kristi Hopkins? Monday, July 27, 2015. We ALL desire that human connection. The feeling when you connect with someone who TRULY gets it. It's a rare thing in the world of Neurofibromatosis. And I have yet to meet someone - that sticks around long enough to even begin to relate to what it's really like having NF. We're ALL different. We all have our struggles. Anyway.back to what this blog post was meant to be.That human connection. When I see someone who has NF walking arou...

INTERNAL PAGES

thrivingwithneurofibromatosis.blogspot.com

1

Thriving with Neurofibromatosis: Hiding with Neurofibromatosis

http://thrivingwithneurofibromatosis.blogspot.com/2015/06/hiding-with-neurofibromatosis.html

How NF Affects MY kids. Who Is Kristi Hopkins? Wednesday, June 24, 2015. So, I've been working at the movie theater for 3 months now. I've made my presence known as someone who is hardworking and reliable. My favorite job there, is working in the cafe' as a barista.I get to make cool drinks and desserts.And I take a lot of pride in the products I send out to people. I am having a lot of fun, but I still struggle with being 'out there' - in front of people. It's a constant struggle. I always have cared&#4...

2

Thriving with Neurofibromatosis: Sensory Integration Disorder

http://thrivingwithneurofibromatosis.blogspot.com/p/sensory-integration-disorder.html

How NF Affects MY kids. Who Is Kristi Hopkins? Sometimes called "sensory integration" or SI) is a term that refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses. Whether you are biting into a hamburger, riding a bicycle, or reading a book, your successful completion of the activity requires processing sensation or "sensory integration.". What Sensory Processing Disorder looks like. As a baby, our daughter was what the pediat...

3

Thriving with Neurofibromatosis: You DO Matter!

http://thrivingwithneurofibromatosis.blogspot.com/2015/07/you-do-matter.html

How NF Affects MY kids. Who Is Kristi Hopkins? Sunday, July 19, 2015. This voice, and these words caught me off guard. I was at work, behind the register, expecting to ring up yet another large drink, ginormous popcorn, and package of Junior Mints. I've read your book." I looked up. "We're friends on facebook. You've been such an encouragement to me. You are so beautiful - you remind me of my mom.". A Quiet Encourager', was how one woman described me, when I was a guest speaker for an NF group in Canada.

4

Thriving with Neurofibromatosis: Human Connection

http://thrivingwithneurofibromatosis.blogspot.com/2015/07/human-connection.html

How NF Affects MY kids. Who Is Kristi Hopkins? Monday, July 27, 2015. We ALL desire that human connection. The feeling when you connect with someone who TRULY gets it. It's a rare thing in the world of Neurofibromatosis. And I have yet to meet someone - that sticks around long enough to even begin to relate to what it's really like having NF. We're ALL different. We all have our struggles. Anyway.back to what this blog post was meant to be.That human connection. When I see someone who has NF walking arou...

5

Thriving with Neurofibromatosis: It's A Small World

http://thrivingwithneurofibromatosis.blogspot.com/2015/05/its-small-world.html

How NF Affects MY kids. Who Is Kristi Hopkins? Wednesday, May 13, 2015. It's A Small World. I know that I have been MIA lately. I'm sorry for that. It's amazing how fast life can sweep by. The "business" and distractions have left me feeling very run down.And when it comes time to thinking about what I could do for NF Awareness month.I just feel like.I have nothing left to give. But - I know this isn't true. I spread NF Awareness EVERYDAY! He said he had never met ANYONE with NF before. Teaching and talk...

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our-stars-shining-brightly.blogspot.com

Our {Wild & Crazy} Days: April 2012

http://our-stars-shining-brightly.blogspot.com/2012_04_01_archive.html

Our {Wild and Crazy} Days Making our days a part of your days! Sunday, April 29, 2012. Time for some pictures. I needed some pictures of Olivia for our NF Walk websites, and of course Jolie had to join us. These two girls made me laugh so much - talking nonstop, posing, not looking at the camera, moving just as I take a picture, and so on . Here are some of our mishaps:. Friday, April 27, 2012. Salt Lake City NF Walk. The Salt Lake City NF Walk. Is August 25th at Sugarhouse Park. Wednesday, April 25, 2012.

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THE LADYBUG GANG: October 2014

http://ladybuggang.blogspot.com/2014_10_01_archive.html

For everyone else in the family lockdown is full of rearranging schedules, keeping Rylie safe from viruses, endless amounts of laundry and cleaning. It's overall just a stress filled week! But for Rylie, lockdown week is her favorite time of every month. It's a week away from school spending the days with her favorite people. Her grandparents! Craft projects, movies, baking, snuggles, and just being spoiled rotten from sun up to sun down! We have in our hearts for these amazing people! We love this place!

jennithebaker.blogspot.com

Getting Out of My Head: Food Edition: Two Words: Maple Bacon

http://jennithebaker.blogspot.com/2010/07/two-words-maple-bacon.html

Getting Out of My Head: Food Edition. NF, Food, and Myself. The Other Part Of My Mind. So now I'm embarking on a new part of my life that is happier. And going in a direction! I was married May 19th, 2012 to a great guy I met at the C.I.A and we're go excited to embark on a life together. He has as culinary degree to match my baking and pastry degree. It's going to be a Good life. Friday, July 16, 2010. Two Words: Maple Bacon. Then what do you want to have for dinner? Add in maple bacon to that, and you ...

our-stars-shining-brightly.blogspot.com

Our {Wild & Crazy} Days: I spy.....

http://our-stars-shining-brightly.blogspot.com/2012/10/i-spy.html

Our {Wild and Crazy} Days Making our days a part of your days! Sunday, October 28, 2012. Subscribe to: Post Comments (Atom). May is NF Awareness Month. Salt Lake City NF Walk Info. Justin, Jesse, and Jude. In a World Where Tragedy is the Only News Day after Day, Read some Mary Oliver to Cheer Yourself Up. Jose and Hose B. Jake's 6 month old Pics. Train Trip -Boise 2014. A Kiss at Powells. Let it SNOW, Let it SNOW, Let it SNOW. December (or, The Story of Sander's Leg.and Christmas).

our-stars-shining-brightly.blogspot.com

Our {Wild & Crazy} Days: November 2012

http://our-stars-shining-brightly.blogspot.com/2012_11_01_archive.html

Our {Wild and Crazy} Days Making our days a part of your days! Monday, November 5, 2012. Hello Family and Friends-. I've been blogging here for over 5 years and with over 900 posts on 3 blogs my account has run out of room. So the blog is moving on-. Our {Wild and Crazy} Days. I'm still working on the layout and details and stuff, but this is where I'll be posting from now on. Thursday, November 1, 2012. I did my first half marathon in July with a time of 2h 26m. I wanted to do another one, so I did the.

jennithebaker.blogspot.com

Getting Out of My Head: Food Edition: Onions and Mushrooms

http://jennithebaker.blogspot.com/2011/09/onions-and-mushrooms.html

Getting Out of My Head: Food Edition. NF, Food, and Myself. The Other Part Of My Mind. So now I'm embarking on a new part of my life that is happier. And going in a direction! I was married May 19th, 2012 to a great guy I met at the C.I.A and we're go excited to embark on a life together. He has as culinary degree to match my baking and pastry degree. It's going to be a Good life. Friday, September 16, 2011. I'm eating a mushroom, and the word creeps into my head as I chew "Fungus. Fungus. Burgers are us...

jennithebaker.blogspot.com

Getting Out of My Head: Food Edition: June 2013

http://jennithebaker.blogspot.com/2013_06_01_archive.html

Getting Out of My Head: Food Edition. NF, Food, and Myself. The Other Part Of My Mind. So now I'm embarking on a new part of my life that is happier. And going in a direction! I was married May 19th, 2012 to a great guy I met at the C.I.A and we're go excited to embark on a life together. He has as culinary degree to match my baking and pastry degree. It's going to be a Good life. Friday, June 7, 2013. Best Pizza Dough Recipe. The short answer is YES, but the long answer is in this post. 1 cup warm water.

jennithebaker.blogspot.com

Getting Out of My Head: Food Edition: Braised Chicken Thighs

http://jennithebaker.blogspot.com/2014/10/braised-chicken-thighs.html

Getting Out of My Head: Food Edition. NF, Food, and Myself. The Other Part Of My Mind. So now I'm embarking on a new part of my life that is happier. And going in a direction! I was married May 19th, 2012 to a great guy I met at the C.I.A and we're go excited to embark on a life together. He has as culinary degree to match my baking and pastry degree. It's going to be a Good life. Wednesday, October 8, 2014. I freaking love fall. Tonight I made one of our favorite fall meals: Braised Chicken thighs!

our-stars-shining-brightly.blogspot.com

Our {Wild & Crazy} Days: February 2012

http://our-stars-shining-brightly.blogspot.com/2012_02_01_archive.html

Our {Wild and Crazy} Days Making our days a part of your days! Friday, February 24, 2012. Mom can't keep me down. Wednesday, February 22, 2012. Climb up, climb down, repeat, repeat, repeat, and so on. Tuesday, February 21, 2012. The tooth fairy is coming! This is the news around our house. Jolie even shared it with her church class as the highlight of her week. The tooth fairy is coming! Don't you love how Jolie works her way into the pictures? So, Olivia lost another tooth. And Austin too. I feel like I...

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Thriving with Neurofibromatosis

How NF Affects MY kids. Who Is Kristi Hopkins? Monday, July 27, 2015. We ALL desire that human connection. The feeling when you connect with someone who TRULY gets it. It's a rare thing in the world of Neurofibromatosis. And I have yet to meet someone - that sticks around long enough to even begin to relate to what it's really like having NF. We're ALL different. We all have our struggles. Anyway.back to what this blog post was meant to be.That human connection. When I see someone who has NF walking arou...

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Thriving with Neurofibromatosis

Sign up below to receive your. Pick-up your Copy of. Click to buy ThriveWear. Part of proceeds support CTF). Welcome to Thriving with Neurofibromatosis! If this is your first time here, please notice. That you can navigate around, using the tabs above. You will find positive and uplifting. Information about NF and discover that no matter what you are facing -. Educating yourself is the first step to living a THRIVING life! You are only limited by. Your own fears and inaction. I have met hundreds of peopl...

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Saturday, April 19, 2014. Quick and Easy Chocolate Cake in a Mug. Yummy hot or cold! Chocolate Mug Cake in a Bowl. 2 TBSP almond flour (I use blanched from Honeyville). 1 TBSP coconut flour. 1 TBSP cocoa or cacao powder. 1 TBSP sweetener (honey, coconut sugar, etc). Pinch of baking soda. 1 TBSP coconut oil plus some to grease bowl. Grease bowl and mix all ingredients together. Bake at 350° for 12-15 minutes. Links to this post. Tuesday, July 2, 2013. Fat Bombs - a weird name for a delicious treat. Cool u...