usher-syndrome.org

notfadeawaybook.com

Rebecca Alexander - Usher Syndrome

http://www.notfadeawaybook.com/index.php/usher-syndrome

A Leading Cause of Deaf-Blindness. Usher syndrome is the most common condition that affects hearing and vision and is the leading cause of deaf-blindness in the United States and Europe. The three types of Usher syndrome are all manifested by progressive vision loss from retinitis pigmentosa (RP), marked by night blindness and an ever narrowing tunnel of central vision, often ultimately leading to blindness. Vision loss is typically diagnosed around the second decade of life. Although research is underwa...

amybovaird.com

Danay Trest

http://amybovaird.com/friday-friends-spotlight-on-danay-trest-2

Friday Friends: Spotlight on Danay Trest. Spotlight on Danay Trest. Part II: “Making a Difference”. I try to bring awareness to everyone, starting with those closest to me. Welcome back to the Part 2 of Danay’s guest post. Hope you enjoy it! Don’t forget to leave a comment to encourage her in her campaign to bring awareness to Usher’s Syndrome! Hello again, Danay here. So glad you have tuned in for Part 2 of my guest post with Amy. Since march 2015, when I began sharing my personal video. So far, though,...

in-our-house.blogspot.com

in our hoUSe....!: Scarf It Up!: Salvaging a Disaster - or TWO!!!!Disasters of the Week!

http://in-our-house.blogspot.com/2014/09/scarf-it-up-salvaging-disaster-or.html

A Parent's Perspective of Usher Syndrome. Tuesday, September 30, 2014. Salvaging a Disaster - or TWO! Disasters of the Week! See the rest of the disaster here. The salvaged product is in the works…photos later! Http:/ scarf-it-up.blogspot.com/2014/09/salvaging-disaster-or-two.html. Subscribe to: Post Comments (Atom). Info about Usher Syndrome. Boys Town National Research Hospital. National Institute on Deafness and Other Communication Disorders. National Institutes of Health - Usher Syndrome.

rebeccaaalexander.com

Rebecca Alexander - Usher Syndrome

http://www.rebeccaaalexander.com/index.php/usher-syndrome

A Leading Cause of Deaf-Blindness. Usher syndrome is the most common condition that affects hearing and vision and is the leading cause of deaf-blindness in the United States and Europe. The three types of Usher syndrome are all manifested by progressive vision loss from retinitis pigmentosa (RP), marked by night blindness and an ever narrowing tunnel of central vision, often ultimately leading to blindness. Vision loss is typically diagnosed around the second decade of life. Although research is underwa...

usheriii.org

International Symposium on Usher Syndrome | History in the Making - Usher III Initiative Usher III Initiative

http://usheriii.org/portfolio/international-symposium-on-usher-syndrome-history-in-the-making

Life With Usher III. Navigate to. - -. Life With Usher III. International Symposium on Usher Syndrome History in the Making. May 11, 2012. International Symposium on Usher Syndrome History in the Making. The Usher Syndrome Coalition presents the Third International Symposium on Usher Syndrome in conjunction with the Sixth Annual Usher Syndrome Family Conference in Boston, Massachusetts at Harvard Medical School’s. Joseph B. Martin Conference Center. This will be the largest gathering of the Usher syndrom...

menosraras.blogspot.com

Exposición sobre Investigación sobre en Enfermendades Raras: Síndrome de Usher

http://menosraras.blogspot.com/2014/02/sindrome-de-usher.html

Miércoles, 5 de febrero de 2014. Hospital de la Fe – CIBERER, Valencia. El síndrome de Usher es la causa de sordoceguera hereditaria más prevalente del mundo. Dr José María Millán. Los pacientes con síndrome de Usher tienen un alto grado de aislamiento social. No pueden comunicarse mediante la lengua tradicional para sordos ya que no pueden ver los signos. Necesitan una lengua de signos que se basa fundamentalmente en el tacto. Y el funcionamiento de la retina, y se la conoce como «interactoma Usher.

in-our-house.blogspot.com

in our hoUSe....!: September 2011

http://in-our-house.blogspot.com/2011_09_01_archive.html

A Parent's Perspective of Usher Syndrome. Wednesday, September 28, 2011. Fundraising for the Foundation Fighting Blindness! My girls are amazing! I am always proud of them but now more than ever. They both decided it was time to get involved in fighting for their own cause. The Foundation Fighting Blindness. Logo on the front. My only regret: I can't participate in either walk with them for a variety of reasons, but I will be there in spirit. I've committed a percentage of my Scarf It Up! To maintain a p...

in-our-house.blogspot.com

in our hoUSe....!: Surgery Day for Roberta's Cochlear Implant

http://in-our-house.blogspot.com/2013/06/surgery-day-for-robertas-cochlear.html

A Parent's Perspective of Usher Syndrome. Friday, June 7, 2013. Surgery Day for Roberta's Cochlear Implant. Massachusetts is cold and rainy, the perfect scenario for sitting and waiting in a dreary waiting room at Mass Eye and Ear Infirmary! After 14 hours in the car the last two days with a crying, whimpering dog, this place seems unusually quiet. Subscribe to: Post Comments (Atom). Info about Usher Syndrome. Boys Town National Research Hospital. National Institutes of Health - Usher Syndrome.

in-our-house.blogspot.com

in our hoUSe....!: Happy Mother's Day!

http://in-our-house.blogspot.com/2013/05/happy-mothers-day.html

A Parent's Perspective of Usher Syndrome. Sunday, May 12, 2013. My daughters amaze me! One is a mom - and a great one at that! The other is not a mom, sadly; she'd be a great mom too! They have showered me with many blessings throughout their lives. This Mother's Day is no exception! Andrea has started a new blog called " Eye Can't Hear You! Http:/ eyecanthearu.com) to provide information and personal history to the hearing and/or visually impaired. This is her post for Mother's Day! I'd like to think I ...