scootersmithsjourney.blogspot.com
Scooter's Journey: Fun with Aunt Tina and Uncle Jeremy
http://scootersmithsjourney.blogspot.com/2012/09/fun-with-aunt-tina-and-uncle-jeremy.html
Blake Evan Smith has a Neuromuscular Disease. We decided to create this website full of pictures and stories for our family, friends, and other families confronted with a Neuromuscular Disease. It is our hope that we can help or inspire others by sharing Blake's Journey. 7 Things you don't know about the Smiths. What is a Neuromuscular Disease? Promise me you'll always remember: You're braver than you believe, stronger than you seem, and smarter than you think. Christopher Robin. Our super smart Aleah.
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: Offering Advice
http://smileshoelace.blogspot.com/2014/09/offering-advice.html
Tuesday, September 16, 2014. An excerpt from a conversation on a Facebook SMA support group. For privacy purposes names have been altered.]. In case you're wondering what makes me qualified to be discussing this, I will give a brief history on my life experience because I do have some. I am 26 years old and have SMA. What type? Labels: quality of life. There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells.
zennorssmardiary.blogspot.com
Zennor`s Diary: July 2011
http://zennorssmardiary.blogspot.com/2011_07_01_archive.html
Sunday, 17 July 2011. Zennor comes home x. Zennor comes home for the day x. Last weekend we had the best day ever after 150days in the hospital and all the training we finally got to bring zennor home for a few hours. We left the hospital at 1.30pm and didnt go back until 6.30pm. While we were at home she only had one desat which was secretion related and did amazingly well on her little adventure. we were the proudest mummy and daddy in the whole wide world. xxxxxxxxxx. Zennor in the sensory room x.
zennorssmardiary.blogspot.com
Zennor`s Diary: zennor 31 weeks. xx
http://zennorssmardiary.blogspot.com/2011/07/zennor-31-weeks-xx.html
Saturday, 9 July 2011. Zennor 31 weeks. xx. Zennor having her PH study. This has been a fantastic week for zennor she has been very very well. She needed a PH study as she has been having frequent small vomits and they thought she had reflux. thankfully this came back normal and they have just decided to change her feeds around a little x. Subscribe to: Post Comments (Atom). Zennor in gran and gramps new dress xx. Zennnor and her dadddy x. Zennor comes home x. Zennor comes home for the day x.
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: August 2014
http://smileshoelace.blogspot.com/2014_08_01_archive.html
Friday, August 1, 2014. Passion. I've been reading some extremely passionate posts as of late that are getting to me. Since I have been unable to think about much else than the hidden agenda behind the posts I am going say something. Subscribe to: Posts (Atom). There was an error in this gadget. Enter your email address:. View my complete profile. Skylar's Journeys a boys battle with SMA. Life with the Ferrells. Hope for Addy Grace*. Presley and Charlotte's Corner. Jojo and his Family: Life with SMA.
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: March 2013
http://smileshoelace.blogspot.com/2013_03_01_archive.html
Monday, March 25, 2013. For days now I have been trying to think of a way to say what I want and not have it sound cliché or, worse yet, stupid. It is ridiculous how many people find a phrase and say it so much that it starts to lose the intended meaning. That is exactly what I don't want and, while it is flattering to be quoted, I didn't write this so don't. Quote me. There, now that that is out of the way, let's get to the point. I recently finished a book, Forever is Over by Calvin Wade. That basicall...
zennorssmardiary.blogspot.com
Zennor`s Diary: Zennor comes home for the day x
http://zennorssmardiary.blogspot.com/2011/07/zennor-comes-home-for-day-x.html
Sunday, 17 July 2011. Zennor comes home for the day x. Last weekend we had the best day ever after 150days in the hospital and all the training we finally got to bring zennor home for a few hours. We left the hospital at 1.30pm and didnt go back until 6.30pm. While we were at home she only had one desat which was secretion related and did amazingly well on her little adventure. we were the proudest mummy and daddy in the whole wide world. xxxxxxxxxx. Subscribe to: Post Comments (Atom). Zennor comes home x.
smileshoelace.blogspot.com
Behind a Shoelace & a Smile: PS I Love You
http://smileshoelace.blogspot.com/2013/03/ps-i-love-you.html
Saturday, March 9, 2013. PS I Love You. This post is a few days late or a few months early, depending on how you want to look at it. Either way it is important to me so please, read on.). Logan with his B4SMA Blanket. Needless to say I smiled for the first time in days and quickly responded with my own picture (which I can't seem to find, regretfully). In any case, I said yes and throughout the SMA Community we were considered engaged. Logan sealed it with a promise of a ring as soon as he saved ...After...
SOCIAL ENGAGEMENT