alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): Home for Christmas 2010!
http://alifeforkaitlyn.blogspot.com/2011/01/home-for-christmas-2010.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Friday, January 7, 2011. Home for Christmas 2010! Just in time for Christmas!
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): Happy Mother's Day
http://alifeforkaitlyn.blogspot.com/2011/05/happy-mothers-day.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Monday, May 9, 2011. Our doctors felt that the scans wouldn't be much help? I'm no...
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): Feeding Intolerance or Bacterial Overgrowth in the Small Bowel ???
http://alifeforkaitlyn.blogspot.com/2010/11/feeding-intolerance-or-bacterial.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Sunday, November 21, 2010. Kaitlyn had a few days before we started treating for b...
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): November 2011
http://alifeforkaitlyn.blogspot.com/2011_11_01_archive.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Monday, November 21, 2011. Oh my dear.what has it been? Where did we leave off?
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): January 2010
http://alifeforkaitlyn.blogspot.com/2010_01_01_archive.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Monday, January 25, 2010. Help Kaitlyn Get Her Wheels! As Kaitlyn's condition is d...
alifeforkaitlyn.blogspot.com
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1): March 2011
http://alifeforkaitlyn.blogspot.com/2011_03_01_archive.html
Kaitlyn Hatchard (Spinal Muscular Atrophy-Type 1). Hello and welcome. My name is Kaitlyn Anne and I have Spinal Muscular Atrophy Type 1. Children born with SMA 1 gradually lose strength in their nervous systems and die, usually by the age of two. There is no known cure or long-term treatment. SMA not only affects the muscles that help me move, but it also affects those that allow me to breathe, swallow and clear my airway. Thursday, March 24, 2011. It was so good of her to see us! If her hypercalcemia is...
ventsuperman.blogspot.com
The Daily Dakin: Pound Out SMA/SMARD Announcement and New Giveaway Goodies!!
http://ventsuperman.blogspot.com/2009/09/pound-out-smasmard-announcement-and-new.html
Wednesday, September 9, 2009. Pound Out SMA/SMARD Announcement and New Giveaway Goodies! We are thrilled to announce we now have 18 sponsors on board, and a few more who have chosen to lump sum donate. That means if I can get my butt in gear and lose the full 30 lbs. we will raise over 600.00 dollars! If you'd like to help, you can do so in two ways:. 1 You can donate directly any amount to Unite for the Cure. And in the donations box write Pound Out SMA/SMARD or Lovelace family. NOW FOR OUR ANNOUNCEMENT.
ventsuperman.blogspot.com
The Daily Dakin: September 2012
http://ventsuperman.blogspot.com/2012_09_01_archive.html
Monday, September 24, 2012. More Dakinisms and School Update. School has gone extremely well thus far. He has missed quite a bit.we are still trying to gauge his strength level, so he hasn't had an entire week just yet. But he is really enjoying it. The little girls in his class have all befriended him as well, which really makes my heart happy. I love how oblivious 4 year olds are to difference.wish we were all like that. And started hitting me, saying, "I will hit exhausted out! Strange child. :).
ventsuperman.blogspot.com
The Daily Dakin: January 2012
http://ventsuperman.blogspot.com/2012_01_01_archive.html
Sunday, January 22, 2012. In the last 6 months or so, Dakin has REALLY caught up on his speech. He is more or less exactly where he should be now, and it is so fun to hear him articulate his thoughts. Here are some of the gems of late:. Playing with rubber bands, he had them stretched and said they were swimming.) I said, "It's swimming? He said, "Rubber bands don't swim! That thing means it's LOADING." (evidently said in a tone that made Jane feel stupid.he has quite a bit of attitude). TRASH FOR A CURE.
ventsuperman.blogspot.com
The Daily Dakin: SMARD--A Brief Tutorial
http://ventsuperman.blogspot.com/2009/08/smard-brief-tutorial.html
Wednesday, August 19, 2009. SMARD- A Brief Tutorial. I am frequently asked about SMARD, and the questions are usually along one of two lines: 1. What is it? And 2, How is it different from 'regular' SMA? If you've been wondering, you're in luck! How is it different from SMA? We have a few projects in the works to raise awareness of SMARD. We have been working with FightSMA. About a SMARD info page on their website, and we have approached Families of SMA. So there you go. SMARD 101. My 7 month old son was...
