patientregistries.eu

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Registry of Registries (RoR). PARENT Adding value to patient registries. A joint EU and Member States response to poor cross-border availability of health data for public health and research. PARENT brings added value by providing Member States with recommendations and tools for implementation of interoperable and cross-border enabled patient registries. 252012 - Start of PARENT Joint Action (JA). 30102013 - Pilot Registry of registries. 3182014 - Toolkit for governance. This field is mandatory.

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Registry of Registries (RoR). PARENT Adding value to patient registries. A joint EU and Member States response to poor cross-border availability of health data for public health and research. PARENT brings added value by providing Member States with recommendations and tools for implementation of interoperable and cross-border enabled patient registries. 252012 - Start of PARENT Joint Action (JA). 30102013 - Pilot Registry of registries. 3182014 - Toolkit for governance. This field is mandatory.

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PARENT | patientregistries.eu Reviews

https://patientregistries.eu

Registry of Registries (RoR). PARENT Adding value to patient registries. A joint EU and Member States response to poor cross-border availability of health data for public health and research. PARENT brings added value by providing Member States with recommendations and tools for implementation of interoperable and cross-border enabled patient registries. 252012 - Start of PARENT Joint Action (JA). 30102013 - Pilot Registry of registries. 3182014 - Toolkit for governance. This field is mandatory.

INTERNAL PAGES

patientregistries.eu

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PARENT

http://patientregistries.eu/newsletter

Registry of Registries (RoR). WP4 Mapping and Analysis of Existing Registries. WP5 Methodological and Governance Guidelines for MS. WP6 Sustainability and future implementation of cross border directive. Registry of Registries (RoR). In this section you can read and download all the Newsletters related to the PARENT Joint Action. Newsletter 1 - November 2013 ( web. Newsletter 2 - January 2014 ( web. Newsletter 3 - April 2014 ( web. Newsletter 5 - December 2014 ( web. Newsletter 6 - May 2015 ( web.

2

PARENT

http://patientregistries.eu/work-packages-activities

Registry of Registries (RoR). WP4 Mapping and Analysis of Existing Registries. WP5 Methodological and Governance Guidelines for MS. WP6 Sustainability and future implementation of cross border directive. Registry of Registries (RoR). WP4 Mapping and Analysis of Existing Registries. WP5 Methodological and Governance Guidelines for Member States. WP6 Sustainability and future implementation of Cross-border Directive.

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PARENT

http://patientregistries.eu/parent-framework

Registry of Registries (RoR). WP4 Mapping and Analysis of Existing Registries. WP5 Methodological and Governance Guidelines for MS. WP6 Sustainability and future implementation of cross border directive. Registry of Registries (RoR). The PARENT Framework is the single point of entry to documents and tools produced or provided within the whole PARENT JA project. 1) A Knowledge Management Platform, holding documents such as Guidelines, State-of-the-art reviews, best practices;.

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PARENT

http://patientregistries.eu/c/blogs/find_entry?noSuchEntryRedirect=http://patientregistries.eu/parent?p_p_id=115%26p_p_lifecycle=0%26p_p_state=normal%26p_p_mode=view%26p_p_col_id=column-3%26p_p_col_pos=1%26p_p_col_count=2%26_115_struts_action=%2Fblogs_aggregator%2Fview_entry%26_115_entryId=22911&entryId=22911

Pilot Registry of Registries (RoR) launch - PARENT News. Registry of Registries (RoR). Pilot Registry of Registries (RoR) launch. Registry of Registries (RoR). Final deliverables of PARENT JA. On 3/29/16 9:04 AM. PARENT JA FINAL EVENT. On 11/10/15 5:18 PM. Presentation of the "Methodological Guidelines and Recommendations for Efficient and Rational Governance of Patient Registries". On 6/1/15 7:35 AM. Pilot Registry of Registries (RoR) launch. On 10/10/13 7:58 AM. Pilot Registry of Registries (RoR) launch.

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PARENT

http://patientregistries.eu/organization

Registry of Registries (RoR). WP4 Mapping and Analysis of Existing Registries. WP5 Methodological and Governance Guidelines for MS. WP6 Sustainability and future implementation of cross border directive.

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aismme.org

Aismme: Associazione Italiana Sostegno Malattie Metaboliche Ereditarie - Onlus

http://www.aismme.org/index.asp

Screening Neonatale Metabolico Allargato. Progetto Verona per le Malattie Metaboliche Ereditarie. Roby Facchinetti per Aismme. Sensibilizzazione allo Screening neonatale. Dona il tuo 5 per mille ad Aismme Onlus. A te non costa nulla, ma per noi può fare molto. Progetto Verona per le Malattie Metaboliche Ereditarie. Screening Neonatale Metabolico Allargato (Screening Neonatale Esteso). Cos’è, quali sono le malattie identificabili, info per le famiglie. Progetto Verona per le Malattie Metaboliche Ereditarie.

eubirod.eu

The EUBIROD Project

http://www.eubirod.eu/news.htm

The BIRO Web Portal. The EUBIROD approach presented at the 3rd European Public Health Conference, Amsterdam, the Netherlands, 12th November 2010. The theme of the 3rd Conference organized by the European Public Health Association in Amsterdam, 10th-13th November 2010, was "Integrated Public Health". Several contributions were presented by the EUBIROD Consortium on the 12th November. The case of BIRO/EUBIROD diabetes registers. Full agenda for the day is available here. BIRO and EUBIROD podium presentatio...

eubirod.eu

The EUBIROD Project

http://www.eubirod.eu/index.html

The BIRO Web Portal. A Shared Evidence-based Diabetes Information System. A working solution to fulfil the European Parliament resolution. Of 14 March 2012 on addressing the EU diabetes epidemic for the systematic data collection and monitoring of diabetes complications and health outcomes across Europe. EUropean Best Information through Regional Outcomes in Diabetes" (EUBIROD). The results can be used to develop recommendations for policy makers and to deliver prompt information to people with diabetes ...

eubirod.eu

The EUBIROD Project

http://www.eubirod.eu/portal.htm

EUropean Best Information through Regional Outcomes in Diabetes. The BIRO Web Portal. The BIRO Web Portal. Click to enter the BIRO Web Portal.

eubirod.eu

The EUBIROD Project

http://www.eubirod.eu/links.htm

The BIRO Web Portal. Written Declarationof the European Parliament on Diabetes, April 2006. Council of the European Union. Conclusions on promotion of healty lifestyles prevention of type 2 diabetes. OECD Quality of Care Indicators Project. IDF international Diabetes Federation. Alliance for European Diabetes Research. Task Force on Major Chronic Diseases. Scientific Support to Policies. AHRQ Agency for Healthcare Research and Quality. Quality of Care Indicators. State Snapshots 2005 focus on Diabetes.

eubirod.eu

The EUBIROD Project

http://www.eubirod.eu/academy/index.html

The BIRO Academy is the major dissemination activity of the EUBIROD project. It is aimed at showing the philosophy underlying the BIRO system, the way it has been developed, the results achieved, the products delivered, and the way this approach evolves. Through the joint support of the European Commission and the Dasman Center for Research and Treatment of Diabetes, we aim to favor the construction of a European Diabetes Register capable of spreading its benefits and collaboration well beyond the contin...

eubirod.eu

The EUBIROD Project

http://www.eubirod.eu/biroDataStandards.htm

The BIRO Web Portal. Download BIRO Definitions as a pdf Document. 1 The BIRO Common Dataset. 0=No MA Test Recorded. End Stage Renal Therapy. Patient Enrolment in DMP for Diabetes. 2 The BIRO Activity Table. 3=lost to follow up. 3 The BIRO Population table. Total Deaths in Male Population. Total Deaths in Female Population. 4 The BIRO Diabetic population table. Total Diabetic in Male Population. Total Diabetic in Female Population. 5 The BIRO Site header dataset. 2=Hospital Clinic (Int. Medicine). Of pers...

eubirod.eu

The EUBIROD Project

http://www.eubirod.eu/publications.htm

The BIRO Web Portal. A book summarizing all the results achieved within BIRO Project and currently adopted in EUBIROD Project. Privacy performance assessment in EUBIROD,. European Journal of Public Health, 2013 Apr;23(2):247-53. Journal of Medical Ethics, 2009, volume 35, issue 12, pagg. 753-761. SPruna, A.Bealle, C. na Purti, D.Licaroiu, D.Ocrain, S. Carniciu, C. Ionescu-Tirgoviste. Practical use of the European best information through regional outcomes in diabetes. FCarinci, L.Rossi. FStorms, F.Ca...

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Washington University Physicians in St. Louis, MO - Online Patient Registration Form

Online Patient Registration Form. Note: Bold text in red. Show required information. Text in green. Show special instructions or formatting examples. When you submit personal information, we offer the use of a secure server. The secure server software (SSL) encrypts all information you input before it is sent to us. Furthermore, all of the patient information we collect is protected against unauthorized access. Are you known by any other name(s)? What year did you retire? COMPLETE ALL FIELDS THAT APPLY.

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Redlands Quilt Extravaganza – Redlands Quilt Extravaganza

Come and join the bi-annual exhibition of inspiring quilts, patchwork, embroidery and creative crafts at the Redlands Quilt Extravaganza in July, 2019. Redlands Quilt Extravaganza has been running since 2003. As part of the Redlands Spring Festival. All forms of creative sewing are promoted and displayed at the Extravaganza with the main focus being Quilting, Patchwork, Embroidery and Creative Textiles. Redlands Quilt Extravaganza Inc. showcases activities from the Redlands Community and promotes and...

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patientregistries.eu

PARENT

Registry of Registries (RoR). PARENT Adding value to patient registries. A joint EU and Member States response to poor cross-border availability of health data for public health and research. PARENT brings added value by providing Member States with recommendations and tools for implementation of interoperable and cross-border enabled patient registries. 252012 - Start of PARENT Joint Action (JA). 30102013 - Pilot Registry of registries. 3182014 - Toolkit for governance. This field is mandatory.

patientregistry.ahrq.gov

RoPR - The Registry of Patient Registries

RoPR is a database of registry specific information intended to promote collaboration, reduce redundancy, and improve transparency. Information on how to register information on the RoPR. Freedom of Information Act. US Department of Health and Human Services. USAgov: The U.S. Government's Official Web Portal. Agency for Healthcare Research and Quality. 540 Gaither Road Rockville, MD 20850.

patientregistrysoftware.com

Patient Registry Software | Disease Registry | Medical Registry

FOR MORE INFO: 877.791.4367. Download Our Special Report:. The Patient Registry Blueprint. On a patient population quickly. Could this be the most powerful and easiest to use patient registry software in medicine today? Collect Data Securely and Only What You Need! See Trends and Outcomes and Understand Impact in Real-Time. The software enables you to rapidly gather retrospective data from multiple centers. You can easily see how your data is trending, outcome improvements, impact of combination ther...

patientrelations.nl

PatientRelations | Medische Media, Marketing & Communicatie

Graag even registreren voor u verder leest! Medische Media, Marketing and Communicatie. Centraliseer de zorg voor patiënten met zeldzame hoofd-halstumoren. De zorg voor patiënten met zeldzame hoofd-halstumoren, die momenteel over veertien centra in Nederland is verdeeld, moet meer gecentraliseerd worden. Hiervoor pleit Mischa de Ridder, radiotherapeut-oncoloog in opleiding, in zijn proefschrift. Verdere centralisatie van de zorg voor deze patiënten zal […]. De Week van Zorg en Welzijn. Bijna één miljoen ...

patientrelations123.com

Patient Relations

Over 20 years as your leader in. Case management software, systems, and support. Cut administrative costs in tracking and managing:. Patient and Staff Feedback. Concerns, Grievances, Compliments). Quality Improvement Organization (QIO) requests. Managing Healthcare Costs, Quality, and Risks. The Data Tracking and Analysis System (DTAS). Is a tried and proven set of automated, quality management tools designed to more efficiently:. Patient and staff related issues and events for:. We offer a tried and pro...

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