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RoPR - The Registry of Patient Registries

RoPR - The Registry of Patient Registries, a searchable database designed to promote collaboration, reduce redundancy and improve transparency. From AHRQ.

http://patientregistry.ahrq.gov/

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RoPR - The Registry of Patient Registries, a searchable database designed to promote collaboration, reduce redundancy and improve transparency. From AHRQ.
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RoPR - The Registry of Patient Registries | patientregistry.ahrq.gov Reviews

https://patientregistry.ahrq.gov

RoPR - The Registry of Patient Registries, a searchable database designed to promote collaboration, reduce redundancy and improve transparency. From AHRQ.

INTERNAL PAGES

patientregistry.ahrq.gov patientregistry.ahrq.gov
1

RoPR FAQ - Frequently Asked Questions

https://patientregistry.ahrq.gov/faq

What is the RoPR? What is a patient registry? How do the Search boxes work? How do Filters work? How does Structured Search work? What do the fields on the Registry Profile mean? What is the relationship between ClinicalTrials.gov records and RoPR records? Can I export or print from the RoPR? How can I bookmark a Registry Profile? Can I see the changes made to a Registry Profile? What happens if a Registry Profile isn't updated for a long time? How can I list a Registry Profile on the RoPR? Post-marketin...

2

Registry Holder Information

https://patientregistry.ahrq.gov/holderinfo

ClinicalTrials.gov Protocol Registration System (PRS). Managing a Record in PRS. Registry of Patient Registries (RoPR) Registration System (RRS). Managing a Record in RRS. If the user is familiar with managing data in PRS but is new to the RoPR advance to Registry of Patient Registries (RoPR) Registration System (RRS). ClinicalTrials.gov Protocol Registration System (PRS). Fields marked with FDAAA. The sections of the PRS record include:. Indicates problems that need to be addressed. Note: If IND/IDE...

3

About the RoPR - Registry of Patient Registries

https://patientregistry.ahrq.gov/about

About the Registry of Patient Registries (RoPR). This system contains registry specific information intended to promote collaboration, reduce redundancy, and improve transparency among registry holders. The RoPR data entry system allows for registry owners to provide information about the following:. Classification and Purpose - the type of registry and its purpose. Progress Reports - includes information about the growth of the registry and any relevant references to available progress reports.

4

RoPR - Structured Search

https://patientregistry.ahrq.gov/structured

CONTACT AND CONDITIONS OF ACCESS. Interested in being contacted:. Freedom of Information Act. US Department of Health and Human Services. USAgov: The U.S. Government's Official Web Portal. Agency for Healthcare Research and Quality. 540 Gaither Road Rockville, MD 20850.

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Support Materials - ClinicalTrials.gov

https://www.clinicaltrials.gov/ct2/manage-recs/resources

Skip to Main Content. A service of the U.S. National Institutes of Health. Example: "Heart attack" AND "Los Angeles". See Studies by Topic. See Studies on Map. How to Use Search Results. How to Find Results of Studies. How to Read a Study Record. Learn About Clinical Studies. Other Sites About Clinical Studies. Glossary of Common Site Terms. Why Should I Register and Submit Results? How to Apply for an Account. How to Register Your Study. How to Edit Your Study Record. How to Submit Your Results. Patient...

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Recherche – RQMO

http://rqmo.org/wp/recherche

Information sur les maladies rares et orphelines. Journée des maladies rares. Centre d’information et de ressources. Centre de soutien SED. La recherche, c’est de l’espoir. 1er mars 2014, Dr Yves Berthiaume, Institut de recherches cliniques de Montréal. Chercheurs cherchent participants pour projets de recherche. Juillet 2016) Invitation à participer à une entrevue au téléphone pour valider le questionnaire PedsQL, un questionnaire sur la qualité de vie d’enfants atteints des maladies suivantes:. Des che...

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Cherchez vous-même – RQMO

http://rqmo.org/wp/cherchez-vous-meme

Information sur les maladies rares et orphelines. Journée des maladies rares. Centre d’information et de ressources. Centre de soutien SED. Cherchez vous-même de l’information sur. Note : Ce document vous dirige vers des sites internet externes. Cependant, nous n’avons aucun contrôle sur le contenu de ces sites et nous ne pouvons garantir l’exactitude des renseignements qui y sont présentés. Orphanet ( www.orpha.net. Liste de maladies rares d’Orphanet. Pour chaque maladie, vous trouverez :. Projets de re...

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Online Patient Registration Form. Note: Bold text in red. Show required information. Text in green. Show special instructions or formatting examples. When you submit personal information, we offer the use of a secure server. The secure server software (SSL) encrypts all information you input before it is sent to us. Furthermore, all of the patient information we collect is protected against unauthorized access. Are you known by any other name(s)? What year did you retire? COMPLETE ALL FIELDS THAT APPLY.

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PARENT

Registry of Registries (RoR). PARENT Adding value to patient registries. A joint EU and Member States response to poor cross-border availability of health data for public health and research. PARENT brings added value by providing Member States with recommendations and tools for implementation of interoperable and cross-border enabled patient registries. 252012 - Start of PARENT Joint Action (JA). 30102013 - Pilot Registry of registries. 3182014 - Toolkit for governance. This field is mandatory.

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RoPR - The Registry of Patient Registries

RoPR is a database of registry specific information intended to promote collaboration, reduce redundancy, and improve transparency. Information on how to register information on the RoPR. Freedom of Information Act. US Department of Health and Human Services. USAgov: The U.S. Government's Official Web Portal. Agency for Healthcare Research and Quality. 540 Gaither Road Rockville, MD 20850.

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FOR MORE INFO: 877.791.4367. Download Our Special Report:. The Patient Registry Blueprint. On a patient population quickly. Could this be the most powerful and easiest to use patient registry software in medicine today? Collect Data Securely and Only What You Need! See Trends and Outcomes and Understand Impact in Real-Time. The software enables you to rapidly gather retrospective data from multiple centers. You can easily see how your data is trending, outcome improvements, impact of combination ther...

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Over 20 years as your leader in. Case management software, systems, and support. Cut administrative costs in tracking and managing:. Patient and Staff Feedback. Concerns, Grievances, Compliments). Quality Improvement Organization (QIO) requests. Managing Healthcare Costs, Quality, and Risks. The Data Tracking and Analysis System (DTAS). Is a tried and proven set of automated, quality management tools designed to more efficiently:. Patient and staff related issues and events for:. We offer a tried and pro...

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